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Thread: One haploidentical transplant experience (ongoing)

  1. #651
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    You are simply amazing, sir, simply amazing. Good luck with this latest trial, Jim. If your sig is correct, this is number 4, I believe. What an example of perseverance and courage you provide to us.

    Good health,


  2. #652
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    Lurking and caring.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  3. #653
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Quote Originally Posted by Didee View Post
    Lurking and caring.
    Cyber hugs all round!

    My 2018 New Year's Resolution:

    "Itchy, not bitchy."

    Got off to a slow start on that one, but am improving. 27.5 mg Pred alternating with 5 mg seems to be a turning point of sorts. Pruritis is still fairly under control, but the rash is back. And, my blood sugar is all over the map. My pancreas is getting a little steamed after 2 1/2 years of this.

    The trial drug has a 71 to 80-something percent overall response rate, which is encouraging. And that was at 200 mg daily. I will be slammed with 400 mg daily. As to long-term effects, it will be another case of:

    "Say doc, what are the long term effects of this drug?"

    Doc (laughing) "You'll tell us!"


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