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Thread: One haploidentical transplant experience (ongoing)

  1. #771
    Senior User
    Join Date
    Oct 2013
    Checking in on you. Sometimes I have nothing clever to say, but I do want you to know you and so many in the forum are not far from my thoughts.
    Age 61
    diagnosed March 20 2013
    High Grade Non-Hodgkin Diffuse B-Cell Lymphoma w/some Burkitt like cells involved
    PET showed spots on liver and enlarged spleen w/hot spots all over Lymp areas
    Treatment started Martch 29 2013 R-ECHOP 6 rounds (1 week on 2 wks home)
    Spinal tap w/chemo for insuarnce (clean spinal fluid)
    neulasta shot after R-ECHop treatment
    June 29 PET clean
    Sepr 12 PET clean
    Nov 11 2013 melanoma removed from back all clear margins 7 inch cut
    Nov 25 confirmed MRSA infection and cleared up with bactrim
    Dec 16 still waiting for wound to close and heal (on his lat and he works out)
    wound from melanoma healed and infection gone, great war scar now
    Cat Scan Dec19th scan was clean
    Feb 20th Ct came back NED "NO ENEMY DETECTED" WHEW!!!
    May 20th 2014 NO ENEMY DETECTED!!!!!!!!! CT clean
    Aug 12 Bloodwork came back as doing what it should be doing. Cat scan in Nov.
    Oct 08 2014 tested positive for hyperthyroid. testing this week to find out more.

  2. #772
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Thank you! Living the dream. Wednesday will tell the tale. Probably will opt out of the clinical trial due to lack of benefit, will probably be scheduled to have my port pulled and then it's decision time on the next drug or two.


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