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Thread: One haploidentical transplant experience (ongoing)

  1. #821
    Super Moderator Top User po18guy's Avatar
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    Well, I seem to have done it again - begun the new year with a virus. A friend asked if this is my new tradition. After a sigh, I suppose so. We'll see how long this one lasts.

  2. #822
    Senior User
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    Oh shoot! Traditions are meant to be broken! Hope you recover quickly.

  3. #823
    Super Moderator Top User po18guy's Avatar
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    Quote Originally Posted by debpower View Post
    Oh shoot! Traditions are meant to be broken! Hope you recover quickly.
    I am doing better. I called SCCA as I thought I had an appointment this month. Nope. Nothing until June. Hokey smokes, Batman, what to do now???

    Live life. Love life. I can get used to that.

    Oh, and I keep checking my chest and it is flat where the bump used to be. I can get used to that, as well.

  4. #824
    Well, them not being interested in seeing you til June Seems to me a positive thing....Now, just go about justifying their confidence in your increasingly good health!
    66 yrs old
    March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1 (ALK-)
    3 rounds of CHOP unsuccessful.
    Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Autologous bone marrow transplant in November of 2012.
    17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
    100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
    One year post transplant check-up: Still fine; NED.
    18month post-translant scans, etc. All fine, save a bit of arthritis.
    11/14/14: 24 month post transplant check-up--still NED.
    5/15/15: No NED this time. Relapse confirmed/ started every 3 week brentuximab
    Allo transplant in Feb 2016.
    100 day post transplant scans in June 2016 fine.
    2 yr. post SCT check up: all fine, no issues.

  5. #825
    Super Moderator Top User po18guy's Avatar
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    Quote Originally Posted by David52 View Post
    Well, them not being interested in seeing you til June Seems to me a positive thing....Now, just go about justifying their confidence in your increasingly good health!
    Now, about that prednisone...

  6. #826
    Senior User
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    Oct 2013
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    214
    Hi Po,
    How is the prednisone treating you these days? I do hope you skin and itch have subsiding. I will say this though, you are the master of the silver lining, that must be a challenge at times. I learn from you.
    Wishing you well and all my best vibes
    Zorro
    Age 61
    diagnosed March 20 2013
    High Grade Non-Hodgkin Diffuse B-Cell Lymphoma w/some Burkitt like cells involved
    PET showed spots on liver and enlarged spleen w/hot spots all over Lymp areas
    Treatment started Martch 29 2013 R-ECHOP 6 rounds (1 week on 2 wks home)
    Spinal tap w/chemo for insuarnce (clean spinal fluid)
    neulasta shot after R-ECHop treatment
    June 29 PET clean
    Sepr 12 PET clean
    Nov 11 2013 melanoma removed from back all clear margins 7 inch cut
    Nov 25 confirmed MRSA infection and cleared up with bactrim
    Dec 16 still waiting for wound to close and heal (on his lat and he works out)
    wound from melanoma healed and infection gone, great war scar now
    Cat Scan Dec19th scan was clean
    Feb 20th Ct came back NED "NO ENEMY DETECTED" WHEW!!!
    May 20th 2014 NO ENEMY DETECTED!!!!!!!!! CT clean
    Aug 12 Bloodwork came back as doing what it should be doing. Cat scan in Nov.
    Oct 08 2014 tested positive for hyperthyroid. testing this week to find out more.

  7. #827
    Super Moderator Top User po18guy's Avatar
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    Thanks, all! It was wishful thinking that I had no appointment until June. I missed one January 10th - a follow up with the ECP/follow-up hematologist. Ooops. Well, we'll take care of that the 28th. I have to travel to Seattle to pick up my wheelbarrow load of prescriptions on a monthly basis anyway. I have a running joke with one of the pharmacists there. I ask him if anything new has come in for me to try...

 

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