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Thread: Testicular cancer

  1. #1
    Regular User
    Join Date
    Mar 2010
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    Testicular cancer

    Sadly I have to write in these forums again. My brother got testicular cancer diagnosis. I would like to hear others experiences about this disease.
    Dad diagnosed MCL stage IIIB, July 2009
    Maci-chopX5, PR. Then 3 more Maxi-chop.
    Stem cells harvested January 2010
    disease proggression March 2010, RICEX2
    CT scan April, tumours shrunk, 2 more RICE.
    Disease proggression May, 2XR-FCM.
    disease proggression July, 1XR-DHAP.
    Passed away 02092010.

  2. #2
    Super Moderator Top User po18guy's Avatar
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    Feb 2012
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    Sorry to hear of his diagnosis. I am sure that you know this, but one of the most famous sufferers is Olympic gold medalist Scott Hamilton. Fortunately, testicular cancer has a very good cure and survivability rate.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. >50 tumors, marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TREC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) Myelodysplastic Syndrome (MDS), a bone marrow cancer.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Haploidentical Allogeneic Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Blood nose dive. Fever. Hospitalized two weeks.
    08/04/15 Engraftment official - released from hospital.
    08/13/15 Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin GvHD arrives. DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    To date: 18 chemotherapeutic drugs in 9 regimens (4 of them at least twice), + 4 immunosuppressant drugs.

    I have been chosen to suffer, therefore, I am blessed. Knowing the redemptive value of suffering makes all the difference.

    "What is faith? It is that which gives substance to our hopes, which convinces us of things we cannot see"
    - Hebrews 11:1

  3. #3
    Newbie New User
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    Feb 2016
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    Sry. I got in when I was 19. The good thing its treatable and its not like 1985 if you get it there is good treatment and chanses are really good you will be cured. But you then its a bit of luck how you will suffer. You are most certain not that sexuall being as you were before becouse the side effect will be all from being steril too being close too normal. Its all individual. But for most simple being a man is not more possibile regariding ejakulation and then being a father a normal way. Its a hard truth and something you really should talk about. Sure you can freeze but its not the same. That bit was that one that struck me that most.

 

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