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Thread: Transplant time

  1. #181
    Senior User
    Join Date
    Sep 2016
    Posts
    164
    Thank you for letting us know the good news, David!!

    Live long and prosper! VMarie

    Quote Originally Posted by David52 View Post
    Clean scans. Blood work fine. No signs of significant GvHD thus far. So off to the next part, which appears to be a whole bunch more vaccinations. Otherwise, all is OK so far.

    Hope everyone is having as good a Monday as possible. Hugs and much love to all.

    David
    Researcher, advocate, and caregiver to my son, age 24
    Diagnosed with Systemic ALCL ALK-neg, DUSP-neg, stage IV, IPI 2, PIT 1, normal LDH, normal B2 microglobulin, July, 2016
    Third round of E-CHOP completed Sept 2016; PET scan NED Sept 2016!
    Sixth and final round of E-CHOP completed Nov 2016
    Primary side effects: Some mucositis and constipation, but this resolved early on. Fatigue. Thrush after chemo resolved with Nystatin. Depression (also an issue before cancer diagnosis).
    Continued to live alone and work two jobs through chemo!
    PET scan NED, Dec 2016!
    March 2017, Experiencing symptoms: cough and stomach issues. Found two small lumps in neck
    CT scan shows relapse. Confirmed by PET March 2017
    CD-30 confirmed with biopsy; Begin Brentuximab April 2017 for at least three cycles

  2. #182
    Senior User Chef's Avatar
    Join Date
    Mar 2016
    Posts
    136
    Such good news David. I'm glad things are stable for you, may many more years be ahead of you without this beast!!!
    Dx ~ NSHL StageIIIA
    CT ~ Generalized lymphadenopathy {groin 6.8 x 3.3 cm} abdomen, enlarged spleen ~ 02/07/16
    Bone marrow, Colonoscopy and Gastroscopy biopsies negative.
    Lung function test ~ Good. ~ Heart function test ~ Good.
    Pet scan ~ Worrisome bone marrow involvement ~ 03/17/16
    ABVD ~ 6 cycles {12 treatments} started ~ 03/31/16
    Interm Pet ~ positve ~ 05/19/16
    End of ABVD ~ 09/01/16
    Pet scan positive ~ 10/04/16
    Start salvage GDP ~ Gemcitabine, Dexamethasone {Prednisone}, Cisplatin ~ 10/27/16
    Misdiagnosed from Hodgkins to TCELL ALK NEG stage 4B ~ 12/01/16
    Brentuximab ~ 12/05/16

    When the power of love overcomes the love of power the world will know peace. ~ "Hendrix"

  3. #183
    Top User David52's Avatar
    Join Date
    Jan 2013
    Location
    Central Wyoming
    Posts
    803
    Quote Originally Posted by Chef View Post
    Such good news David. I'm glad things are stable for you, may many more years be ahead of you without this beast!!!
    Thanks, Pal. And will be cheering hard for you from the gallery when you do your auto later this month. You got this.

    David
    65 yrs old
    March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1 (ALK-)
    3 rounds of CHOP unsuccessful.
    Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Pet scans after 4th and 6th cycles showed no evidence of lymphoma.
    Autologous bone marrow transplant in November of 2012.
    17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
    100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
    One year post transplant check-up: Still fine; NED.
    18month post-translant scans, etc. All fine, save a bit of arthritis.
    11/14/14: 24 month post transplant check-up--still NED. Scanziety still sucks.
    5/15/15: No NED this time; reactive nodes in groin; scheduling biopsy.
    Relapse confirmed/ started every 3 week brentuximab
    Allo transplant in Feb 2016.
    100 day post transplant scans in June 2016 fine.
    1 yr. post transplant blood work fine; clean scan. No GvHD so far.

  4. #184
    Senior User Chef's Avatar
    Join Date
    Mar 2016
    Posts
    136
    Thanks man! It's a bit surreal. I was more ready for the transplant a few months ago now that I've felt decent lately. The "transtipitation" is kickin in lol. Ice chips and a smoothie diet are in order as I hear they help with the throat and mouth issues surely to arise! Do you have any other advise to share?

    Thanks in advance!

    Dx ~ NSHL StageIIIA
    CT ~ Generalized lymphadenopathy {groin 6.8 x 3.3 cm} abdomen, enlarged spleen ~ 02/07/16
    Bone marrow, Colonoscopy and Gastroscopy biopsies negative.
    Lung function test ~ Good. ~ Heart function test ~ Good.
    Pet scan ~ Worrisome bone marrow involvement ~ 03/17/16
    ABVD ~ 6 cycles {12 treatments} started ~ 03/31/16
    Interm Pet ~ positve ~ 05/19/16
    End of ABVD ~ 09/01/16
    Pet scan positive ~ 10/04/16
    Start salvage GDP ~ Gemcitabine, Dexamethasone {Prednisone}, Cisplatin ~ 10/27/16
    Misdiagnosed from Hodgkins to TCELL ALK NEG stage 4B ~ 12/01/16
    Brentuximab ~ 12/05/16

    When the power of love overcomes the love of power the world will know peace. ~ "Hendrix"

  5. #185
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    Location
    New York
    Posts
    5,912
    Clean scans. Blood work fine. No signs of significant GvHD thus far. So off to the next part, which appears to be a whole bunch more vaccinations. Otherwise, all is OK so far.
    David, I'm not sure how I missed this good news but congratulations, never the less. I hope things are continuing apace for you and that your recovery continues without incident or setback.

    Good health,

    kermica

  6. #186
    Top User David52's Avatar
    Join Date
    Jan 2013
    Location
    Central Wyoming
    Posts
    803
    Thanks, Kerm. So far, so good. Going to just keep on keeping on. Am hoping your stuff starts moving in the right direction shortly.

    David
    65 yrs old
    March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1 (ALK-)
    3 rounds of CHOP unsuccessful.
    Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Pet scans after 4th and 6th cycles showed no evidence of lymphoma.
    Autologous bone marrow transplant in November of 2012.
    17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
    100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
    One year post transplant check-up: Still fine; NED.
    18month post-translant scans, etc. All fine, save a bit of arthritis.
    11/14/14: 24 month post transplant check-up--still NED. Scanziety still sucks.
    5/15/15: No NED this time; reactive nodes in groin; scheduling biopsy.
    Relapse confirmed/ started every 3 week brentuximab
    Allo transplant in Feb 2016.
    100 day post transplant scans in June 2016 fine.
    1 yr. post transplant blood work fine; clean scan. No GvHD so far.

  7. #187
    Senior User Kimv's Avatar
    Join Date
    Dec 2015
    Location
    Chico, ca
    Posts
    384
    Good luck Chef. If the swallowing becomes too much of a pain they will offer you a morphine pump. Take it!! There is no use in trying to "tough it out." It helps control the pain and gives you some relief. Sending good thoughts your way in hopes that you come out of this fight...a winner. xoxoxoox kim
    Oct. 27, 2015 diagnosed with angioimmunoblastic T cell lymphoma.
    December 2016 began choep chemotherapy-6 treatments 21 days apart.
    February 24 scan showed no evidence of disease!
    Continue choep chemotherapy treatments.
    APril 2016 returned to Stanford for high dose Cytoxan, removal of port, and insertion of Hicckman catheter.
    Neupogen injections daily to increase white blood cell counts.
    MAy 5, 2016 Apherisis.
    MAy 21, 2016 HIgh dose chemotherapy VP 16.
    MAy 24, 2016 High dose chemotherapy Cytoxan.
    MAy 26, 2016 Autologous Stem cell transplant.
    JUly 27, 2016 Scan shows no evidence of disease. Still In remission!
    October 31, 2016 Scan shows no evidence of disease...NED again!

    love strong....live long❤️💜💚💛💙

 

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