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Thread: Generalized cancer pain need relief

  1. #1
    Newbie New User
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    Generalized cancer pain need relief

    Hello,
    I had thyroid cancer & had it removed back in 2012. I have been doing okay with pain for a while but it's to the point where if I don't take care of it something really bad could happen. I have really bad mood swings and it's like I wake up with pain every single day at maybe a 5 and goes all the way up to a 9, just to the point where I can barely stand to live another day. But if I leave work and not near any stress I can sit and enjoy myself some what, it's not as bad. But it's also to the point where even if i have not stress I may be at a level 5 pain or 7 from doing nothing! I can't stand this anymore.. I really did not want to get RX'd opiates but I think I will go talk to these pain specialists tomorrow & try to get on some regimen because this is getting ridiculous. The anxiety I have coupled with the mood swings is UNBEARABLE. It's pain that feels like needles and fire just tearing through my brain and arms and legs.. it's hard to describe i hope i will be better at describing it to the docs. I just want to be calm and sedate and pain free, not feel like i want to strangle everyone for no reason! this sucks. I work full time and i am in a serious relationship.. I have terrible anxiety about what would happen if I lose my job. I need to keep this show going.. i cant let my mood swings and pain keep me from living my life! I sometimes feel like i just want to quit my job and move in with my Mom, get a medical marijuana card and do nothing because that would be much better than living this hell.. but if I can get some pain killers like hydrocodone which works amazingly good for my pain I know I can keep this show going. I am in sales! I have to try and stay energetic and ready to help people and my pain makes it where I barely want to be at work let alone help a customer! This is so terrible. Blood work was done a few months ago & only thing that came up was low vitamin D which I have tried taking vitamin D supplements for but thats a whole-nother story. Thyroid levels check out okay. Low platelet count but not consistently & doc doesn't seem too concerned about that. I still have cancer so the only thing I can think is that it's wreaking havoc on me and thats causing the pain / anxiety. Either way, whatever it is I know that opiates help so much and I feel like that's my only ticket out of this hell. Sorry if this seems all over the place which I am sure it is, just had 3 beers to try and calm the pain. I don't normally drink (haven't had a drink since a wedding last year) or do drugs don't judge me please.

  2. #2
    Administrator Top User Didee's Avatar
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    The pain you are having is in relation to your cancer or was the treatment you had successful and you are in remission?

    http://www.cancerforums.net/threads/...926#post150926
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  3. #3
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    Pain is in relation to the cancer. To be honest I have not been seeing a cancer doc. Just been going to my naturopath / thyroid doc. Kinda scared about going to see a cancer doc again but I am "cancer free" afaik.

  4. #4
    Administrator Top User Didee's Avatar
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    If you have chosen not to treat your cancer with proven therapies when you could and distrust doctors then I can' t see us being of much help to you I'm sorry. Maybe other alternative forums can be but here we all go the scientifically proven route as our choice. If you need drugs to help with your pain then you will have to seek help from your doctors. I am so sorry you are hurting so much and hope you can find relief.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  5. #5
    Newbie Regular User
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    Of course nothing is going to work as good as Prescription pain meds. But those do have their own issues because of side effects etc. Some natural alternatives that might not be as strong as RX but might be enough are the following.

    Curcumin (bcm-95)

    Frankincense

    Cannabis (marijuana)

    Kratom

    Also some other things that are not NATURAL but will have less side effects then opiates would be celebrex and ibuprofen.

    Hope that helps

  6. #6
    Administrator Top User lisa1962's Avatar
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    Note to all viewing and posting to this sub-forum, under no circumstances is it ever a good idea to introduce supplements or so called remedies to someone receiving traditional treatment. Always discuss with the medical professions as some supplements could have an adverse effect.

  7. #7
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    Just have to say all the above that i listed other then the exception of kratom are clinically studied and been proven to be effective for their intended purpose. I would never post anything on here that is a so called remedy. I think to completely dismiss something just because it's not a prescription is a mistake. Doctors can easily recommend many things that are over the counter. That doesn't make them less effective. It is not our job to make that decision. That's between the doctor and the patient. Let the patient bring all options to the doctor and have a discussion on what's best.

    I can totally understand being against people posting stuff about fake cures, but I think you guys need to ease up a bit about things that have been tested in a clinical setting. We are all here for the same purpose. Be as helpful as possible without swaying anyone in either direction. Data Rules. Let the data speak for itself.

    And just to clear up what i wrote in my previous post. I only posted them so the names can be brought up in conversation with your doctor. Any decisions you make are to be made with you and your doctor only.

    I mean no disrespect and am only here to offer help.

  8. #8
    Super Moderator Top User Baz10's Avatar
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    Circumin topically applied for nerve pain.
    Most definately NOT to be used during chemotherapy treatment.
    Sorry we will not relax our stated policy regarding alternatives.
    Member guidance and support is one thing we do and do well without introducing alternative remedies.
    I accept you are here to help and assist, but so far your posts have erred towards parallel or alternatives.
    Just a suggestion, lay off this line of support and concentrate if you wish to stay on practical support.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  9. #9
    Newbie New User CHR1S's Avatar
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    Don't be in pain. With today's drugs you shouldn't need to be. It's a waste of time. See a doc and get the proper meds. People generally tell me opiates work for them. Mind the side effects such as constipation though, they need actively managing. Try and change to something like else if it doesn't work.

    Well done you for still being at work in spite of this!

 

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