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Thread: The beast revisits

  1. #941
    Top User mojo's Avatar
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    Thinking of you Baz.

  2. #942
    Super Moderator Top User Baz10's Avatar
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    May 2011
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    Thanks mojo,
    Today start the pre CT diet and take the 1st 25 ml dose of Gastrografin at 4 pm.
    Third CT virtual Thursday will hopefully throw some light (pun intended) on what is /are the causes.
    We can live in hope, yet so far the old dog is still in tail chasing mode.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  3. #943
    Experienced User
    Join Date
    May 2018
    Posts
    89
    Hope everything goes well Baz and that you finally get some answers.

    Barry
    i certainly can not fault the hospital they are like a dog with a bone.
    Wont give up until they find something.
    Now a letter arrived with an appointment with vascular next Tuesday At 3.30.
    Note
    Bring a urine sample in a clean container.
    Quite Why I’m unsure.
    But it seems at last vascular has woken up as well.
    Last consultation last October with vascular following the pneumothorax which slowed my heart rate to less than 40 causing occlusion to right femoral artery was and I quote verbatim.
    ”Use it or lose it”.
    Last edited by Baz10; 08-09-2018 at 06:30 PM. Reason: Got edited into Sparles post

  4. #944
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
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    virtual colonoscopy done this afternoon.
    I tell you when they inflated the remaining large bowel and small bowel that brought tears to my eyes.
    Painful is somewhat of a understatement in exactly the area I have been getting the pain and grumbling symptoms.
    Then tracks down the left inguinal.
    Normally I’m quite cheery and have as we say a crack on with the radiologists.
    Although they “inflated carefully ) when she was stood chatting my remark was
    I don’t wish to be rude, but can we just get on with it please.
    That got their focus and indeed we got on with it.

    So inflated, iradiated then deflated was all over and done inside 30 minutes.
    Congratulations to the Filipino nurse Jimmy who got the cannula in in one go and to the Swedish radiographer Ingrid who did a splendid job.

    Now wait and see
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  5. #945
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
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    5,226
    It can only happen to me again.
    Writhing this morning with bowel (what’s left of it) going beserk and cramping with more dashes to the toilet than I wish to count.
    DW calls the surgery and the doc arrives in 30 minutes.
    Has a good palpate, stethoscope out and listens to the stomach and bowel.
    If I say it was gurgling so loud anyone within 20 feet could have heard it.

    Pronounces, you severe Colitis.
    I need to get you comfortable whilst the drugs work, with that produces a syringe and whacks some concoction in.
    2 minutes later I was gone for about 3 hours.
    Waking up felt somewhat more comfortable, but the cramps are still there
    although less severe, but still very uncomfortable.
    Hey ho at least I’m back in the land of the conscious.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  6. #946
    Moderator Top User Fourlegsgood's Avatar
    Join Date
    Aug 2011
    Posts
    953
    You are not having fun.

    I'm just sorry I cant do anything. I could ask someone to take a picture of me falling off a horse if that would help?

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  7. #947
    Top User mojo's Avatar
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    Apr 2010
    Posts
    2,362
    Hoping cramping leaves quickly!

  8. #948
    Super Moderator Top User Baz10's Avatar
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    May 2011
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    Fun ! Somewhat of a understatement Nick if one can call it fun which it wasn’t.
    I have come to a conclusion given events over the last 15 months

    Everytime anyone in a hospital decides to cut, sample, biopsy do any form of internal investigation results in me being admitted with sepsis (twice) or some other form of parallel reaction.
    This being just the latest shall we say “event” Fortunately this time no mad dash in the back of a ambulance.
    As my GP said yesterday their challenge is how to prevent me from being in hospital.
    My jocular response
    Youre fairly useless at acheiving this aren’t you, admit it.
    No response other than a wry smile.
    So nearly 2 am and pleased to report I’m far more comfortable than 12 hours earlier.

    Boy ohh boy I didn’t realise just how vicious my extra short colon could be, aided I’m told by the help of the small bowel.
    Rue smile on my face when I think of a title for this episode
    Revenge of the colon or The bowels revenge.

    mojo,
    I wouldn’t exactly term it as just cramping, sort of the whole of the abdominal region being put through a crusher in spasms.
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  9. #949
    Senior User
    Join Date
    Dec 2012
    Posts
    244
    Well, What the heck; Barry?
    I come over to this side of the forum to see how well you are doing, only to find to you knotted up with pain.
    Your constitution has got to be sorely (no pun intended) taxed by now! I’ll bet both you and Ms Anne have had just about enough of all these doctor/hospital visits by now. I sure do hope that you and your team get this all sorted out for brighter days in the future!

    ‘Thinking about you, my friend , and wishing you well.

    Hang in, zim

  10. #950
    Super Moderator Top User Baz10's Avatar
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    May 2011
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    5,226
    Zim,
    Thanks pal and I agree we have just about had enough.

    Next round on Tuesday pm with vascular, no doubt I shall hear more waffling about why the occlusion occurred (which we all know anyway) rather than any suggestions of what they intend doing.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

 

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