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Thread: The beast revisits

  1. #791
    Super Moderator Top User Baz10's Avatar
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    May 2011
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    UK
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    Bob, as always your wit and humour never ceases to make me smile.
    Still I’m incrementally getting to feel better yet it’s becoming harder for this “old” man.
    Yes I agree I am married to a saint, she has put up with a helluva lot over the last decade with me and is always motivating me.
    Truly I am more than fortunate.
    You look after your goats.
    Baz
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2.
    Prostate Cancer confirmed Gleason 3+4.
    Active surveillance ceased and intervention recommended.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 07/09 to be done.
    Just a little recurrence and another 20 cm of colon vanished under the knife.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  2. #792
    Super Moderator Top User Baz10's Avatar
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    UK
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    Hopefully the last update on this thread.

    still progress is incremental with what I’d say no big progress to speak about.

    Leg, nope they won’t do any intervention due to my close shave last surgery.
    So it’s walk, walk, walk as advised, but it gets to a point where it is impossible to walk through the pain.
    Never mind determination may pay off in the long run, yet I cannot envisage me getting on my planks, but who knows we shall try.

    The worst is my stomach upset, Mbeverine partially works. Will have to see what the GP says as I can’t continue feeling nauseous permanently.

    Heaven knows what drug concoctions they put into me in ICU.
    Still,
    onwards and upwards.
    Getting my mojo back and that’s been difficult.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2.
    Prostate Cancer confirmed Gleason 3+4.
    Active surveillance ceased and intervention recommended.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 07/09 to be done.
    Just a little recurrence and another 20 cm of colon vanished under the knife.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  3. #793
    Super Moderator Top User po18guy's Avatar
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    Feb 2012
    Location
    Pacific NW, USA
    Posts
    8,256
    I am not as medically toyed-with as you were, and neither am I in as much pain. What they do when we are "out" is, and remains a mystery, I'm afraid. In my case, I am finding that pain can be a friend. No, really. But only if you have this incessant itching on your upper body. Pain over-rides the itch. Some great exchange, eh? So it is near-scalding showers, followed by cold water, class IV steroid foam and skin lotion. Still, we wake up and do what we are told.

    Snowboarding?

  4. #794
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Location
    UK
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    Po,
    boarding, you’ve got to be kidding.
    the stance for boarding one leg behind the other with me won’t work as I need at least 6 inches between planks to give me a stable stance.
    Anyway, boarding clothing, big baggy pants with ones ass half exposed and oversized jackets doesn’t suit my style.lol
    and
    I don’t sit in places which are positively dangerous as boarders have a habit of doing.

    Humour
    A few years ago at Val d’Isere saw a boarder acting a complete pillock take out a young kid of about 8 he and his mates thought it was hilarious until the kids father wasted no time in decking the boarder.
    Father to boarder
    So you find that funny do you.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2.
    Prostate Cancer confirmed Gleason 3+4.
    Active surveillance ceased and intervention recommended.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 07/09 to be done.
    Just a little recurrence and another 20 cm of colon vanished under the knife.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  5. #795
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Location
    UK
    Posts
    4,821
    Stomach still giving me problems so attempted to get an appointment this morning.
    As we are short on GP’s 5 surgeries have joined forces to form a hub where duty doctors are available at our local health centre purely due to overwhelming demand, not quite so as my GP’s now only work in surgery 3 days a week.
    Due to stress on GP’s, hmm.
    Wish I could have done the same when I worked in Dubai with my area of responsibility from Eastern Russia to Australia and all places in between.

    Tried to get appointment, receptionist suggested she make an appointment with the Hub, to which I replied
    Last time the duty GP rang, said I’m too complex and she would make a same day appointment with a My GP that knew me personally.

    Suggestion from receptionist try seeing my pharmacist, which I saw and Wendy said you need a doctor follow me.
    As the pharmacy is in the same building as my doctors, she marched round and politely raised the roof stating she is not an unpaid triage professional.

    miraculously a slot opened for Friday.
    Heavens above what is our NHS coming to.
    We shall see on Friday after we have “words”.

    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2.
    Prostate Cancer confirmed Gleason 3+4.
    Active surveillance ceased and intervention recommended.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 07/09 to be done.
    Just a little recurrence and another 20 cm of colon vanished under the knife.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  6. #796
    Moderator Top User Fourlegsgood's Avatar
    Join Date
    Aug 2011
    Location
    UK Leicestershire
    Posts
    877
    Ah, the squeaky wheel gets oiled.

    All the best , Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping after 8 weeks and first competition 10 weeks after operation. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  7. #797
    Regular User
    Join Date
    Nov 2017
    Posts
    22
    As, a newbie I've, been following most of ur threads,,, I love ur positivity even in ur dark times
    This is usually how I deal with stuff also
    So I find u highly amusing,,, but I need unto stay around to get me through my journey which is begining soon,,,,
    Nothing but good vibes Barry,,,,
    I need u now so keep it together FFS😁

  8. #798
    Moderator Top User jorola's Avatar
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    May 2014
    Location
    Alberta
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    Baz hun I am s sorry you are suffering with the stomach problems. Mick has lots of stomach upset due too. He and his drs attribute his problems to the chronic pain he is in with his leg. After 4 attempts to replace his femoral artery which all failed the nerves have been damaged severely in it. His scar runs from his groin to almost his ankle. That and the just general lack of blood in that leg with even the slightest use of his leg, he uses what what little blood and oxygen is in his leg so then there is the pain from that. Mick is stubborn about taking any medication but he does take Ran-rabeprazole for it which he says really helps. I truly hope that your dr can find something that works for you.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  9. #799
    Super Moderator Top User Baz10's Avatar
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    Location
    UK
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    Thankfully Jodie I’m not quite at Micks stage, I really feel for him, it’s nay pleasant at all.
    Me being me despite stomach problems I’m walking at a reasonable pace, probably quicker than I should to be honest as I intended to get onto my skis end February if that was at all possible.
    Common sense tells me I have no chance of making my aspirations yet I’m damned if I will be beaten irrespective of what the docs say.

    A goal is just that, Spurs one on to achieve and I’ve confounded them twice, why not a third time.
    Yet pushing to hard and the pain stops me in my tracks, but and it is a big but.
    One gets chaired or towed up and the rest is downhill where gravity does the hard work.
    So my reasoning is, skiing for so long suggests I can get down with minimal effort (less strain on the thigh and leg muscles) therefor I may just about make it.

    Optmism still remains a d Anne is pushing md to make late February.
    We shall see.
    Good luck and positivity to all.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2.
    Prostate Cancer confirmed Gleason 3+4.
    Active surveillance ceased and intervention recommended.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 07/09 to be done.
    Just a little recurrence and another 20 cm of colon vanished under the knife.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  10. #800
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,417
    Mick is classified stage 5 with his artery problems but you know Baz, Mick is like you. He still enjoys putting in his workshop making things and do renos around the house as he can. True it takes longer and if he pushes too much he has to give his leg time to recover but like you he has his passions and he just makes it work. So what if my hot tub sat on its side for the summer? It's right side now just not hooked up. He had to be sure the piers and base it was sitting on could handle a dump truck sitting on it weight wise (because with Mick if it is not going to be done right don't bother). Spring and I will have my hot tub when he builds his own insulated walls, deck and stairs for it. He is an amazing carpenter. Where there is a will, there is a way, right? You will learn how to best manage this for you and then off you will be skiing again.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

 

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