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Thread: Conditioning Chemo

  1. #11
    Moderator Top User
    Join Date
    Mar 2010
    Posts
    1,318
    Hope you have as good a weekend as you can before D day or should that be B'day
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits


    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  2. #12
    Experienced User
    Join Date
    Nov 2015
    Posts
    97
    Well I dont know about the chemo given before the allo transplant but if it is a high dose chemo similar to the regimen BEAM given before the auto transplant, it is HORRIBLE and I have disagree about the side effects.
    I dont want to freak you out and I believe it is different with everyone else but my brother went through hell. he wasnt able to eat and drink for weeks first due to nausea and afterwards due to mucositis. I havent seem him suffering from the "normal" chemo like he did with that.
    And now it is planned that he does the allo and he is scared to death as he doesnt want to go all through everything again.

    I wish you do better!
    Story of my brother:
    09/2015: Diagnosed at the age of 45 for Composite Lymphoma: Morbus Hodgkin / T-Cell Lymphoma, Stage III (Spleen involvement)
    Treatment plan: 4x BEACOPPesk. followed by ASCT in first line therapy
    10/2015, Treatment Start: 4x BEACOPPesk. (with 2x dose reduction due to leukopenia)
    12/2015: CT scan shows clear shrinking of tumors
    01/2016: 1x DHAP (PBSC harvest)
    02-03/2016: Another biopsy showed still too many tumor activity, change of regimen: 3x IGEV
    04-05/2016: Highdose Chemo BEAM + autolog. transplant.
    07/2016: PET CT Scan = NED
    Doctors believed the allo transplant should follow asap to avoid any relapse as it is very likely to occur. 2nd opinions disagreed. My brother finally declined further treatment.
    11/2016: CT-Scan = NED (1st post-treatment CT)
    01/2017: CT-Scan = NED (2nd CT done earlier as my brother suffered from pneumonia)

 

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