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Thread: Elective Hysterectomy at 30

  1. #1
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    Elective Hysterectomy at 30

    Hi, everyone!

    I was diagnosed with HPV/CIN3 about ten years ago and had a LEEP done. Things have been sitting in the CIN1 area post LEEP, and I've done the yearly followups. Every time my results have come back as abnormal (not surprising), I have to go for a colposcopy, and a biopsy is always done. The results of HPV still being present varies from test to test and visit to visit, and I'm just tired of it. I know that 30 is a young ago, but I have never had the desire to have children and neither has my husband (we've been together for five years).

    The biggest reason, however, is that I've already been dealing with stage III brain cancer for almost four years, and have been told by my doctors that pregnancy hormones would most likely cause my cancer to become more active, and any treatment I underwent would cause harm to any pregnancy I had. I don't want to have to continue monitoring another part of my body for a cancer situation, especially one that isn't really serving me a purpose.

    That being said, have any of you had experience with talking to your GYN about actively pursuing a hysterectomy at a young age for a similar reason (sans the brain cancer)? If so, did you have doctors that were on board with your choice, or did you have to fight and seek out specialists yourself?

    Thank you!

  2. #2
    Moderator Top User jorola's Avatar
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    May 2014
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    Hello I am sorry for the delayed reply as I was away.

    I am afraid I have not had this experience. I am getting a hysterectomy for different reasons and I am 44 and very done having children they are 22 and 18 so yep done!

    I think the big thing here is that,in my opinion, is that it should be your choice and this is your health we are talking about. If hormones are a risk to your brain cancer this is something to consider. Can your neuro dr refer you to someone?

    As for choice - it is your body, your disease and you and your husband are adults who have made a decision. However in saying that I had a dr once ask my husband for permission to tie my tubes - archaic if you ask me. Anyway, I hope your dr is on board with you. I can completely understand your reasons why. You have enough on your plate with the brain cancer to deal with this too!

    I am sorry no one has replied sooner but I wish you the best of luck and hope, if you haven't already, find a dr willing to help you.

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  3. #3
    Regular User
    Join Date
    Mar 2014
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    12
    Thank you for your reply!

    I know my situation is a little different. I have an appointment with my doctor tomorrow for a colposcopy and biopsy (again, haha) due to my last pap smear. I plan on addressing everything with him and hope that he is understanding about my situation. Fingers crossed that I'll have a positive response! If not, I'll resort to seeking out specialists myself for other opinions.

  4. #4
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,756
    My fingers will be crossed all goes your way. Let us know how it goes.

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

 

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