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Thread: Oral cancer? I am very confused

  1. #1
    Newbie New User
    Join Date
    Jul 2016

    Oral cancer? I am very confused

    Hi. I am new to forum

    My boyfriend is diagnosed with neck cancer but he also was told by the doctor that
    he has lung cancer as well..
    So we do not know at the moment if the cancer started from neck or from lung.
    We actually do not know anything. Also, the doctor gave him 2 years ...
    that was all I heard.

    I am scared to death and so is he. He actually doesn't want to talk to me....
    or anyone else.

    He thinks he has no hope...... please help me out.

    Is 2 years... like last stage of cancer.....? I am honestly very confused.
    He is only 28 years old...

    Sorry.. I am all over the place... sigh

  2. #2
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Blog Entries

    We need more info....sorry.

    For what it is worth plenty of people here have proven their doctors wrong when it comes to survival times.

    If you can please find out some more info and I also invite you to put a post in our coping and support forum.
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  3. #3
    Moderator Senior User IndyLou's Avatar
    Join Date
    Jan 2014
    Hello, lovedoc. I'm sorry that you are here under these circumstances. I'm sure it feels like there's a lot that you're dealing with--information, appointments, discussions with specialists or nurses, and the weight of a cancer diagnosis. Your boyfriend sounds like he's going through some stages of grief, and he's in a denial period right now. While no one wants to hear that they have cancer, his young age should help him in his battle.

    It would be helpful to hear other information that you may have about the diagnosis. It sounds like the cancer may have originated in the neck, and then metastasized to the lungs, which is not an uncommon occurrence in that type of cancer. Your boyfriend would need to discuss that with his oncologist to better understand that.

    As far as staging goes, I wouldn't get too caught up in that. I find it hard to believe that a doctor would "give him 2 years" and simply leave it at that. That's plenty of time for treatments, and there are some terrific new drugs on the market; e.g., Keytruda, Opdivo, that have been shown to work wonders.

    I know there's an initial feeling of helplessness after such a diagnosis, but the sooner your BF (and you) embraces the situation, the better off he'll be. Can you tell us where your boyfriend is now in terms of his diagnosis and treatment plan? What tests has he had? Has there been any biopsies performed? What kinds of scans, CT, PET?

    As for you, you can help by assisting the best you can. Be available, and attend doctor visits as your schedule allows. Take notes during the visits, and help your BF think about questions and concerns.
    Age 52 Male
    early Feb, 2013 - Noticed almond-sized lump in shaving area, right side of neck. No other "classic" cancer symptoms
    late Feb, 2013 - Visited PCP for check-up, PCP advised as lymphoma. Did blood work, orders for CT-scan, referred to ENT
    3/7/13 - CT-scan inconclusive, endoscopy negative
    3/9/13 - FNA of neck mass
    3/14/13 - Received dx of squamous-cell carcinoma, unknown primary
    3/25/13 - CT-PET scan reveals no other active tumors
    3/26/13 - work/up for IMRT
    4/1/13 - W1, D1 of weekly cetuximab
    4/8/13 - W1, D1 of IMRT
    5/20/13 - complete 8 week regimen of weekly cetuximab
    5/24/13 - Complete 35-day regimen of daily IMRT
    mid-July 2013 - CT-PET scan reveals no active tumors, but shows necrotic tissue at site of original tumor
    early Sept 2013 - partial neck dissection to remove necrotic tissue. Assay shows no cancer present.
    Spring 2014 - No signs of cancer
    Spring 2015 - NED
    Spring 2016 - NED
    Spring 2017 - NED
    Spring 2018 - NED
    Spring 2019 - NED


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