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Thread: Which way do we go?

  1. #71
    Senior User
    Join Date
    Dec 2012
    Location
    Lake Stevens, WA
    Posts
    153
    Lo Petra,
    That's Crikey!! And so welcome, too.
    zim

  2. #72
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    84
    Thank you all!
    I think it was just in time as yesterday did hit me fatigue...so i was sleeping 11 hours at night and a few more during the day
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  3. #73
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    84
    Just wanted to let you all know, side-effects are now gone!!! Yippieeeeeeeeee
    no more sleeping all day and no more nauseated.
    The fight goes on, im back to my strength!!!
    Petra

    PS yesterday we already had 36 degree Celsius here, great spring!!! I want rain please....
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  4. #74
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,301
    P-a-r-t-y time!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  5. #75
    Regular User
    Join Date
    Jun 2017
    Posts
    24
    Hi. Wondering how things were going with you as haven't seen a post from you lately. Hope you are regaining your strength and enjoying life. Linda (LLC)

  6. #76
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    84
    Hi Linda!!!

    Thanks for asking, just back from Doc
    Had new Ct done, today she said: all goon nothing did grow!!!!!!!!
    Will have another head MRI in 4 weeks time to see what happens there.
    Hope you are alright?
    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  7. #77
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,301
    Great news Petra! Do let us know how the MRI goes ok?
    BIG HUGS!!!!!!
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  8. #78
    Senior User
    Join Date
    Dec 2012
    Location
    Lake Stevens, WA
    Posts
    153
    G'day Luv,

    From your post over on my thread; You said;

    "We decided to move to another state now, wow just 1400 kms away."

    There must be a very strong calling to pull you away from beautiful NSW!
    So, when is the great move?

    Here's wishing you and your's all the best!
    zim

  9. #79
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    84
    we will move to Victoria, as it is to humid here on the Beach. And so we will give it a try, in around 2 months, need to go there first to find a place.
    All the best for your ct soon....hugs Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

 

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