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Thread: Which way do we go?

  1. #31
    Administrator Top User lisa1962's Avatar
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    new york
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    Petra:

    Well, that is great news! Thank you for sharing it with us...

    Lisa

  2. #32
    Moderator Top User jorola's Avatar
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    May 2014
    Location
    Alberta
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    Awww Petra such amazing news. Keep it coming girl!

    Hope you celebrated! You deserve it!!!!!!!!!!

    All the best!!!

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  3. #33
    Moderator Top User jorola's Avatar
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    May 2014
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    Alberta
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    Petra been a long time since we heard from you. Hoping all is well hun...hugs!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  4. #34
    Senior User
    Join Date
    Dec 2012
    Location
    Lake Stevens, WA
    Posts
    116
    HI Petra,

    Ditto Jodie's comment. We miss you.
    zim

  5. #35
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    53
    Hi Jodie and Zim!
    I'm still alive , just had CT and bone scan and next Wednesday i will see the doc. Than i can update.
    Big hugs and by the way its nearly winter here lol...still 26 degree Celsius
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    Fingers crossed

  6. #36
    Moderator Top User jorola's Avatar
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    May 2014
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    Alberta
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    LOL Petra that is a nice summer day!

    God to hear from you. Hope all went well with the tests. YES,please do let us know how things go!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  7. #37
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    53
    UPDATE

    My Bone scan shows no cancer .... just old age lol
    My CT scan said >> no new growth and rest all the same.
    So I am very happy and will just continue with the NIVU.

    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    Fingers crossed

  8. #38
    Top User mike.b's Avatar
    Join Date
    Aug 2012
    Location
    Gambrills, MD
    Posts
    1,320
    Good report!! Keep it up.

    mike
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

  9. #39
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
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    Aww Petra hun I am so so so HAPPY for you!!!!!!

    You so made my day!!!

    Go live, laugh and love.
    Hugs!
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  10. #40
    Senior User
    Join Date
    Dec 2012
    Location
    Lake Stevens, WA
    Posts
    116
    Hi Petra,
    Great news for you and all of us also!
    Keep on keeping on!
    Hugs
    zim

 

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