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Thread: Which way do we go?

  1. #21
    Senior User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    106
    Tanks Jodie!

    Getting now finally my port on Thursday 17/11, exciting
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  2. #22
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,408
    How ya doing Petra? Thinking of you!

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  3. #23
    Senior User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    106
    Just a little update, all good here
    got my port and it makes it so much easier,should have done this a year ago!
    Still feeling great like a :normal: person, doc said we just have to watch the thyroids now as blood did show they are changing.But that's a common side effect.
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  4. #24
    Senior User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    106
    New update!
    I still feel great!!!
    But now my Thyroids are playing crazy , its going up and down. Doc said we have to watch it its a common side effect. Was also tested yesterday for Auto immune disease.
    The only thing I can feel since about a month is a very dry mouth.
    So watch and see , next CT end of January.
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  5. #25
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,408
    So great to hear from you Petra!
    Regardless you are always so positive but things do seems to really be going your way, thank goodness.
    Keep us posted on the testing and continued good health!

    Hugs,
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  6. #26
    Senior User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    106
    Thanks Jodie!!!
    How is your hubby going???

    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  7. #27
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013
    Location
    new york
    Posts
    3,120
    Hello Petra:

    We always welcome such good news. It sounds like things are moving forward in a good way. Some little hiccups along the way but all and all, you sound like you are doing well.

    Keep on doing what your doing Petra!

    Lisa

  8. #28
    Senior User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    106
    Will get a new CT scan today, and Wednesday 18th I see the doc and know what's going on.
    Fingers crossed Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  9. #29
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,408
    May it be nothing but good news Petra. Hubby doing fine thanks. Sorry I have been under the weather and missed your last post. My apologies. When do you get the results of the scan?
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  10. #30
    Senior User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    106
    Got my new results!
    Tumor all the same, Lymph nodes on Neck and under arm all back to normal, in Lung and chest minimal smaller ( 1,1 to 1,6 cm).Thyroid back to normal

    I'm happy with this...
    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

 

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