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Thread: Which way do we go?

  1. #141
    Experienced User
    Join Date
    Jun 2017
    Posts
    98
    I'm happy your liver scan turned out good. I know
    when work progresses on your house you will enjoy your new house more and more. It's exciting to see things take shape into something you envisioned!

  2. #142
    New Ct results are in!
    First i need to say it was the first time i had my CT here so they didn't have a old one to compare....
    Head all clear , yippieeeee
    Lung, a bit hmmm confusing...scaring!!! in the right upper lobe medially an underlying mass cannot be totally excluded here?? So where is my tumor gone?? And a 4mm nodule , could be anything.
    All other organs clean, except a 7cm heterogeneous uterine fibroid.
    So as you can see, i'm still alive and well and going ahead with Nivu.

    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    Fingers crossed

  3. #143
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,642
    Great news on the old noggin! That is so awesome hun! Are they going to get your previous scan so they can do a comparison? Yes that 4mm nodule could be anything from scaring to inflammation to who knows. Sorry about the fibroid - hopefully it is asymptomatic for you.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

  4. #144
    Experienced User
    Join Date
    Jun 2017
    Posts
    98
    Very good news Petra and of course I am very relived head is clear. Will keep good thoughts about lung nodule, often nodules are just old scaring. Stay well and I know I don't have to tell you to enjoy each day.
    Linda

  5. #145
    Senior User
    Join Date
    Dec 2012
    Posts
    244
    HI Petra,
    I think that the MOVE and the New house did it.
    Now enjoy the coming summer time with no worries.
    regards, zim

  6. #146
    So tomorrow is the big day...i got to go to the Dentist and will get all upper Teeth out then the week after all lower...from all the chemo and smoking my gums are going down so all is loose, we did try to rescue at least my crones but it didn't work. So soup it is for a few weeks.

    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    Fingers crossed

  7. #147
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,642
    It's not too bad Petra. I had all my teeth removed at once. Not saying it was favorite day either LOL and I was put under. I hope they are doing the same for you. Just think though, you'll have a new pearly white smile after you get your dentures. I promise you'll be smiling more than ever then!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

  8. #148
    i will be awake, just needle..leaving now
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    Fingers crossed

  9. #149
    I'm still alive ....
    all lower Teeth out, it only took 30 mins wow inclusive needles...after 5 hours i found my tongue again and now i got some pain, but took a tablet and all good.
    We see how i'm gonna sleep..but i will survive and then next week the same game again. Woohooo, merry xmas without Theeth.
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    Fingers crossed

  10. #150
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,642
    Oh you poor dear. I am petrified of needles hence part of the reason I was heavily sedated. LOL love the "theeth" comment. Hope the pain stays mild and manageable.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

 

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