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Thread: Which way do we go?

  1. #171
    Senior User
    Join Date
    Jun 2017
    Posts
    138
    Hi Petra,
    Have been thinking of you alot and really hope you are doing o.k. Even if you can`t answer right now, wanted you to know, your twin is keeping you in my thoughts.
    Linda

  2. #172
    Thanks Linda!!!
    I'm fine, i did get my Nivu again and my Heart is still playing up but a lot less, the Cardiologist said i'm not going to die from it , soooo all okay. The only change now, i will get from now on Nivu only evvery 4 weeks, but thats fine with me. Spring is here and a lot to do outside.
    Big hugs, Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  3. #173
    New Ct scan >> all the same yippieeeeeeee
    get another 24 hour heart monitor just in case, and Thyroid still crazy, but all good.

    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  4. #174
    Quote Originally Posted by Pet1968 View Post
    New Ct scan >> all the same yippieeeeeeee
    get another 24 hour heart monitor just in case, and Thyroid still crazy, but all good.
    Good report!! Keep it up.
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

  5. #175
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,756
    Awesome news! Big hugs!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  6. #176
    Senior User
    Join Date
    Jun 2017
    Posts
    138
    Very happy for your GOOD CT scan. My thyroid acts up too.
    Twins!
    Linda

 

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