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Thread: Which way do we go?

  1. #161
    Quote Originally Posted by Pet1968 View Post
    New CT , still NED!!!
    But for a change new side effect - pneumonia , but now on antibiotics.


    Sorry about the pneumonia but yeah!
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

  2. #162
    Senior User
    Join Date
    Dec 2012
    Posts
    309
    Hi Petra,

    Ditto what Mike said.... in spades!

    zim

  3. #163
    Senior User
    Join Date
    Jun 2017
    Posts
    130
    Ditto for me too! Hope you are feeling better. I am happy we are still (and hopefully will always be) NED twins.
    Linda

  4. #164
    Hi Twinny!!!
    Yes you're right. I feel much better now, all back to my normal.
    Thanks all!!!
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  5. #165
    Senior User
    Join Date
    Jun 2017
    Posts
    130
    Hi Petra,
    Just thinking of you and wondering how things are going with you?
    Fond thoughts from you twin,
    Linda

  6. #166
    Hi Twinny Linda!
    Yes all good here so far, had a few problems with my Heart stuttering, had 24 Hour ECG now waiting to see doc on 6. next month. They think it comes from Thyroids. So we will see.

    Hugs Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  7. #167
    Senior User
    Join Date
    Jun 2017
    Posts
    130
    Petra,
    Glad you are doing good and hope doctor says all is normal . I have to have my thyroid monitored and am on thyroid medication because of immuno. drugs. (probably like you, too!)
    Twins!
    Linda

  8. #168
    Yep Linda i'm on Thyroid meds too, just as you said ( twins) .
    So they now got some results back, i got extra heartbeats..will have a echo next week and had extra heart blood test done. Didn't get infusion as they may suspect it could come from it. So we will see, keep you updated.
    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  9. #169
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,728
    LOL just remember who called you 2 the NED twins first! So happy the both of you are NED. Sorry to hear of the after affects of treatment though.
    Do continue to take care dear ladies.
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  10. #170
    Thanks Jodie love that name..
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

 

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