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Thread: Which way do we go?

  1. #51
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    64
    Hi LLC!

    Yes you are right that is exactly how it is. I am a bit better today, so will go out a bit in the sun later.
    Tomorrow my friend is coming to stay for a few days, this will help too.

    Thanks you all, Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  2. #52
    Regular User
    Join Date
    Jun 2017
    Posts
    16
    Just letting you know I was thinking of you and hope your doctors appointment tomorrow goes well. Also, hope you had a good visit with your friend.
    Linda

  3. #53
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    64
    Thanks for that!!!
    Yes saw the Onc today, all okay so far, they say its normal to have some nerve damage, can take Months to go away! But i can feel it getting better, my Hands are getting feeling again. Now i have a app with the Radiotherapy Doc next Wednesday as they want to give me some radiation on the spot where the Tumor was so make sure nothing is left. Will also have another MRI then.
    Hope nothing has come back. Will let you know then.
    How are you going ?? Hope better?
    Hugs Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  4. #54
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,191
    Petra your positive go get'em attitude is absolutely inspiring to all here. Wishing you nothing but continued success and good news.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  5. #55
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    64
    Thanks hun!!

    Yes i did get over my Depression period, have to stay positive to win !!!!!
    And nothing much else we can do, just don't give up.I am so lucky to have a great Hubby, it wasn't easy for him we me on Steroids, driving him mad lol.
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  6. #56
    Senior User
    Join Date
    Dec 2012
    Location
    Lake Stevens, WA
    Posts
    142
    Hi Luv,

    Gees, When I asked what's next on you plate, you didn't have to go for the head!
    It's good that you've got that sorted out, (or cut out as the case may be.)

    I really didn't like me much on Steroids, neither did anyone else! Dumped them straight away.

    I'm sure glad that you are on the mend and staying positive. Hug your man!

    regards,
    zim

  7. #57
    Experienced User
    Join Date
    Sep 2016
    Location
    NSW Australia
    Posts
    64
    Thanks Zim, you're strong too, and hey we don't give up!!!!
    Just not looking forward to radiation, but we will see. Let you know.
    Heads up
    Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

 

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