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Thread: low grade serous stage 3

  1. #1

    low grade serous stage 3

    She had a huge cyst remove along with her right ovary and was sent to mayo clinic for testing. The pathology report came back with state 3 low grade serous cancer on both her ovaries, omentum (but not to the lymph nodes that were samples), appendix, and somehow not the fallopian tube were all affected. The next procedure will be hysterectomy on the 24th of this month and 18 weeks of chemo 2 weeks after that. We accidentally looked up statistic survival rate and low grade is actually worse than high grade, especially for people under 35, she's 29. We're completely in the dark and trying our best to fight on. Already changing her diet. I seriously don't even know what to ask in this thread but it would be great to hear anyone with her situation.

    Thank you so much

  2. #2
    Moderator Top User jorola's Avatar
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    Hi there

    I am so very sorry you had to look us up.

    Is this your wife, daughter?

    No matter, poor girl is very young. Where is she getting treatment?

    A hysterctomy itself is a major surgery. She will need lots of pillows for support. Comfy loose clothes to wear. The surgery really affects urinating and the bowels so constipation is a real issue for the first week. Make sure to drink lots of water and do little walks around the house as able to help get them moving. If they are taking her other ovary then she will go into surgical menopause. Not sure if they will start her on hormones or not due to the cancer. But on top of the emotions of dealing with cancer her hormones may go out of whack sending her into crying fits and anger for no reason. Be gentle, be patient.

    Chemo is much more tolerable than it use to be but everyone does react differently. Keep a symptom journal and remember this - hydrate, hydrate, hydrate.

    Please don't hold fast to the statistics you read. They are just that. Statistics. Number one from what years is the info gathered from? With the new treatments (and I also mean different types of chemo) they might be completely irrelevant.

    Everything probably feels so overwhelming right now - all these appointments and info coming your way. We often recommend 2 people going to appointments - 2 sets of ears are better than one. Also use a scribbler to write down all the questions you think of as you think of them and take it with you. Leave space between the questions so you can write the answer down.

    Of course being healthy is a good thing but never make any changes including changing food, adding vitamins and supplements etc without speaking to the dr first. Although you mean well, you might actually inadvertently make the treatments not work as well.

    I hope this helps a bit. Of course as things go on you may have more specific answer and please come back and we will do our best to help. This is an awesome supportive group here.

    Peace and comfort

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  3. #3
    Newbie New User
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    Hi,
    I'm not sure if what I say will help your situation, but I do hope it gives hope.......

    I was diagnosed in late September 2006 with stage 3 ovarian cancer, so its been just over 10 years since my operation that removed ovaries, Fallopian tube and not to mention at the same time had a hysterectomy. 2 weeks after the operation I was told by specialist that I had to start chemo ASAP as I am looking at up to 2 years of life without chemo or 5 years with chemo. That was the longest drive home (by myself) that day.

    I watched my cousin die from breast cancer. She was in remission for 2 years when the cancer came back and took her beautiful life from us all. My cousin had done chemo for what seemed like forever. She deteriorated not long after. Because I saw what chemo had done to her, I think unconsciously I new I will never let that happen to me.

    The day I found out about the seriousness of the cancer, the stage that I was at I cried all night with my husband. When I woke up the next day, I had a shower and said I will not die like my cousin. Word spread to family and friends about the cancer and when I was asked about it by them I would always refer to it as "the cancer thing" I would not CLAIM IT!!!! in other words not once did I ever say "I have cancer". I refused chemo as my mind body and soul was so against it to the disappointment of Doctors, family and friends. My husband supported me with my decision. But I did have to explain to family and friends why chemo was not an option. With the knowledge of what it did to my cousin and the fact that my whole being was set on not doing chemo along with not claiming cancer, I think this is the reason why am able to tell my story today.

    The hormone pills the doctors gave me after my operation that I was suppose to take for the rest of my life, I stopped taking 2 weeks after my op. I didn't want this pill to be apart of my life also, so its not.

    I had moved from NZ to AUS in 2008 and was told by specialist here that I should of died. 5 years had passed I was given the all clear and that the cancer had disappeared. So i'm guessing I am 1 in a million. So I pray that your partner? will be too.

    Just A Thought - Change your way of thinking!!!!!

  4. #4
    Moderator Top User jorola's Avatar
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    Dear celina2006,

    Congratulations on being well and healthy.

    However this poster has not been back since she first posted in Oct 2016 and to prevent confusion I will be closing this thread. You are welcome to start your own if you wish.

    We are a scientific based forum. I get you made choices 5 years ago and completely respect them. Your body therefore 100% your choice. However I will mention too we are a scientific based forum. Any non scientifically proven posts will be deleted. You do not say much of how you beat it and I guess I the end that does not really matter. All the good health to you.

    All the best,

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

 

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