A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Page 2 of 2 FirstFirst 12
Results 11 to 15 of 15

Thread: Wife just "diagnosed"

  1. #11
    Yes, goal is the same.

    Well, no cancer cells in the fluid, so they did a biopsy. I dont have the details, all i was old on Friday was the pathology came back and yes, she needs chemo. I will get details Monday and will ask for a copy of the path report for my records, just in case of need.

    On Monday she is meeting with Gyn/Onc who will direct the chemo, and then go directly to the Infusion room one floor down, for her first treatment. We are both scared, but prepared. I am working on getting a guy who my daughters friend used, who comes to the house and works with her on a good wig. we'll probably buy at least 2.

    She had more fluid drained on Friday, as an outpatient, and they put in a pleurix, a catheter that goes into her side or back, that allows us to drain it when needed, so we dont have to keep going back to the hospital. I am hoping that once the chemo starts, the fluid will stop accumulating and dissipate, so that the catheter can come out.

    She is so uncomfortable, cant find a position that makes her even slightly comfortable, legs are swelling a bit, abdomen is full of fluid, and i feel helpless to help her. Its so f'n frustrating.
    Diagnosed at age 64 (in November, 2014), PSA 4.32
    Nov 2014 BX 3 of 12 cores positive original pathology G6 10%, G6 20%, second biopsy, 1st negative
    G8 (3+5), 70%. Johns Hopkins second opinion, G3+5=8 downgraded to 3+3=6 @80%
    Surgery with Dr Ash Tewari Jan 6, 2015
    Post surgical pathology, stage T2c, bilateral disease, upstaged to G7(3+4)
    5% of Prostate involved in Tumor
    Organ confined, negative Margins, negative SV, negative lymph nodes (9) PNI positive
    PSA 2/15 <.02, 4/15<.02, 7/15<.02, 10/15 0.00 (different lab), 1/16 0.00, 6/16 <.02, 1.17, .02 (uh-oh), 2/17 .02. May 2017 <.1 Lab did standard test.
    Repeat 5/17, .033 (new lab). Next test sept 2017
    Decipher score low risk, .37%

  2. #12
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,307
    Each step brings you close the that goal.

    At least with the catheter that should make life easier - less running around. We both know that any cut backs on running around is much better for the both of you. You already have know time consumed with appointments.

    It is so hard when it is not you but your loved one who is sick isn't it. I so understand that helplessness feeling. My husband is quite private too - like your wife. All you can to is your best and I know she will appreciate it.

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  3. #13
    Thanks Jodie
    Pathology came back low grade. I guess that's good news bad news since it doesn't respond as well to chemo. But dr said on balance, it's good news.
    Also all the fluid that's been drained at various times has been tested and no cancer cells, so I guess that's a plus.
    Today we start the war, first day of chemo. We've gotten a lot. Tips from both friends who've been thru it, and the Doctors staff. We are as ready as we'll ever be.
    Diagnosed at age 64 (in November, 2014), PSA 4.32
    Nov 2014 BX 3 of 12 cores positive original pathology G6 10%, G6 20%, second biopsy, 1st negative
    G8 (3+5), 70%. Johns Hopkins second opinion, G3+5=8 downgraded to 3+3=6 @80%
    Surgery with Dr Ash Tewari Jan 6, 2015
    Post surgical pathology, stage T2c, bilateral disease, upstaged to G7(3+4)
    5% of Prostate involved in Tumor
    Organ confined, negative Margins, negative SV, negative lymph nodes (9) PNI positive
    PSA 2/15 <.02, 4/15<.02, 7/15<.02, 10/15 0.00 (different lab), 1/16 0.00, 6/16 <.02, 1.17, .02 (uh-oh), 2/17 .02. May 2017 <.1 Lab did standard test.
    Repeat 5/17, .033 (new lab). Next test sept 2017
    Decipher score low risk, .37%

  4. #14
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Location
    Alberta
    Posts
    1,307
    Tell your wife "go get 'em!"

    Oh and I hope you are just a regular early riser and are getting some sleep? Posting at 453 am? Dude....sleep! you also need rest!

    Just saying (with care and compassion and yes a bit of a mom voice).

    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  5. #15
    Well, we are getting thru the first week of chemo. Monday was chem day, carbo/taxol. Next two Monday's are taxol only.
    So Monday and Tuesday no chemo effects. Wednesday a small bit of Nausea, she took a Zofran and it cleared up fast. Thursday and Friday extremely fatigued, no appetite. A little improvement today (Saturday). Yesterday she had procedure to put in a port. So that didn't help. I'd imagine hair will start falling out in the next week or two. Ugh.
    Diagnosed at age 64 (in November, 2014), PSA 4.32
    Nov 2014 BX 3 of 12 cores positive original pathology G6 10%, G6 20%, second biopsy, 1st negative
    G8 (3+5), 70%. Johns Hopkins second opinion, G3+5=8 downgraded to 3+3=6 @80%
    Surgery with Dr Ash Tewari Jan 6, 2015
    Post surgical pathology, stage T2c, bilateral disease, upstaged to G7(3+4)
    5% of Prostate involved in Tumor
    Organ confined, negative Margins, negative SV, negative lymph nodes (9) PNI positive
    PSA 2/15 <.02, 4/15<.02, 7/15<.02, 10/15 0.00 (different lab), 1/16 0.00, 6/16 <.02, 1.17, .02 (uh-oh), 2/17 .02. May 2017 <.1 Lab did standard test.
    Repeat 5/17, .033 (new lab). Next test sept 2017
    Decipher score low risk, .37%

 

Similar Threads

  1. Hi. "I have lymphoma." "What's that?" "It's cancer."
    By Sandy_2012 in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 44
    Last Post: 07-02-2013, 02:29 AM
  2. What is Lung Cancer Stage "4a" and "4b"?
    By Spouse in forum Lung Cancer Forum
    Replies: 3
    Last Post: 01-11-2013, 10:32 AM
  3. Starting "Folfiri", not "Folfirinox"
    By Lisa Renee in forum Pancreatic Cancer Forum
    Replies: 1
    Last Post: 12-03-2012, 11:33 PM
  4. "Varieties" of Testosterone "Food" for Prostate Cancer
    By sequoiaranger in forum Prostate Cancer Forum
    Replies: 3
    Last Post: 07-24-2011, 03:20 AM
  5. Replies: 0
    Last Post: 07-19-2010, 07:10 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •