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Thread: 24 year old with BCC

  1. #1
    Newbie New User
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    Oct 2016
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    1

    24 year old with BCC

    Hello all,

    I recently got diagnosed with BCC on my back. I am glad I got it checked out because I kept telling myself that I am too young to get skin cancer, but it can happen to anyone. I was just wanting to hear back from anyone who has gone through this and could let me know what how the treatment was and if they have had problems with reoccurrence. Thanks for any and all advice.

    Christy

  2. #2
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    Posts
    6,580
    Hi, Christy, and welcome though I am sorry you have reason to be here, of course. I had a BCC about 10 or 12 years ago and it was removed from behind my right ear in an out patient procedure. Though I have had other cancers, I have had no recurrence of a Basal Cell since then. The procedure was straight forward under local anesthesia. The dermatologist/surgeon used Mohs microsurgery to ensure clean margins in my case.

    I think you will find the removal to be tolerable. The worst thing that is going to happen is that you will get to know your dermatologist pretty well as you will be seeing him/her every six months for skin exams going forward. Good luck with everything and remember, BCC is probably the most curable cancer you can get.

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  3. #3
    Experienced User
    Join Date
    May 2014
    Posts
    75
    Sorry to hear you are dealing with this at such a young age. I had my BCC treated with 30 radiation treatments for health reasons verses Mohs Surgery. I waited too long to see a doctor while the BCC grew.....thinking it was a cat scratch or bug bite that would not heal. I had multiple biopsies on my nose after treatment of the BCC due to too much sun exposure throughout my life and the nose, well it was not happy. You can read my prior posts if you are ever bored.....but I think my case was unusual, and doctors here are very cautious "when in doubt cut it out " scenario.
    Mohs would be my preferred choice if I had it over to do again looking back. Either way, it had to be treated. But, your dermatologist will guide you through recommendations of course. Good luck, and its the least invasive skin cancer .
    Be well and be happy, enjoy your youth!
    2015 October 21 full nose skin graph w/stomach tissue as donor site
    2015 Aug 3 more nose biopsies(2 positive MIS)
    2015 Jan. Aldara on nose 4 week treatment
    2014 Nov. multiple nose biopsies...melanoma in situ /WLE Dec.18/clear
    2014 Pre melanoma Nose tip biopsy/re-excised for complete removal
    2014 3 month exam, Aug. Vulva biopsy benign
    2013 Feb. Scan showed 3 spots towards the bridge of my nose: 30 Nose radiation treatments for BCC & SCC
    2012 BCC on tip of the nose

  4. #4
    Regular User
    Join Date
    Mar 2014
    Posts
    23
    Hi Christy, i am so glad they found it at your age, they will take it out with a safe margin and that should be the end of that one. You can use it as a reason to now cover yourself in sunscreen, hats, sunglasses and other uv protective gear. Your young enough to prevent yourself from ended up with many when your older. Unlike me, i am now 52 have had all varieties of skin cancers, even had another biopsy yesterday on my ear. Too late for me all the years of damage has been done and i just have to catch them early enough to keep the scars small.
    Good luck , but please remember to slip slop slap.
    Harpbird

 

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