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Thread: Cancer- the six letter word that changed my life.

  1. #61
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    Sounds almost like it could be focal seizure activity? Is it constant?

  2. #62
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    yes its constant. He had this during radiation treatment and it went away like a week after radiation was done.
    Hubby with inoperable brainstem glioma. Dx- 8/30/2016. Finished radiation- 10/28/2016. started temodar 5/20/2017- didn't tolerate it. started avastin 6/24/17.

  3. #63
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    on a separate note, do you guys know any organizations that help pay off the growing deductible for brain tumor patients?
    Hubby with inoperable brainstem glioma. Dx- 8/30/2016. Finished radiation- 10/28/2016. started temodar 5/20/2017- didn't tolerate it. started avastin 6/24/17.

  4. #64
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    If there is anything, the American Cancer Society would be most likely to know about it, I think. Are you registered with them?

    You might also try posting a question in the "Financial Issues" section of the forum, here:
    https://www.cancerforums.net/forums/26-Financial-issues

  5. #65
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    I haven't registered with them. I guess I will. Thanks for the link @ GBM

    The MRI shows lots of improvement from June. However, not as clear as in April. We are continuing his avastin every two weeks and he has a follow up to see if it's still working four weeks from
    Now. And MRI 8 weeks from now.

    His tightness is what's bothering the most. The doc says it is most likely due to the location of the tumor sending off a tightness sensation. She increased the neurontin and we are hoping it goes away when the tumor shrinks.

    Thankful for a good report.

  6. #66
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    Glad to hear about the good scan; sounds like the Avastin is working.

    When I first joined this forum, the data was that Avastin only had an effect in 40-50% of cases. However, more or less everybody on this forum who's tried Avastin has gotten some good results from it.

    Hope the tightness symptom improves.

 

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