Ouch! I hope that ankle heals quickly, Bank!
Oh man, that had to hurt - especially getting the boots off. Best wishes for a speedy recovery,
7/12 DX stage 3 pan can (adenocarcinoma) @ 65 - borderline resectable
8/12 - 10/12 Chemo (GTX) & Stereotactic Radiation
12/12 Whipple - R0 margins, 2/29 nodes pos.
1/13 - 5/16 Vaccine clinical trial - randomized to control group - vaccine showed no benefit
2/13 - 8/13 Gemzar for 6 months
Quarterly scans - no evidence of disease to 10/14 - spot on lung being watched - possible infection 2 months on antibiotics
3/15 - spot larger - probable met - surgery planned
4/15 - PET prior to surg - recurrence & lung mets - Surgery cancelled - EUS w/ FNA showed adenocarcinoma - Stage 4
5/15 - 9/15 Folfirinox @ reduced dosage - Stopped treatment after 11 infusions due to neuropathy
10/15 - 8/16 maintenance 5-fu every other week
8/16 - stable disease on both CT and PET/CT - chemo holiday while other treatments explored
9/16 - lung biopsy confirms pan can met,
10/16 -NanoKnife to pancreatic bed -PET after Nano showed new met in hilar lymph nodes - SBRT to both lung & lymph
Still open to immuno-oncology trials (vaccines or checkpoint inhibitors) if I find one I'm eligible for.
Stay busy and live life to the best of your ability.
Yea, I have been using a walking stick all day. It is still swollen really bad. I did come at a bad time. Family and friends are trying to fill in the gaps. We are so behind at our store. I definitely need to get more help to get caught up, then hopefully I will be better in time to return to work. If not it might be an extended leave deal until I can walk on it.
Originally Posted by po18guy
Follicular Non-hodgkins lymphoma Stage 2 on 10-28-2011
Upgraded to Low grade follicular non-hodgkins lymphoma Stage IV on 11-11-11.
Cancer in lymph nodes found in neck, back of abdomen, between both lungs and cancer cells found in bone marrow test.
Prescribed Treanda and Rituxan, 4 months. To start 11-28-2011.
Rituxan treatments start 4-25-2012, once every two months for two years
Learning as I go.
This being Good Friday, a little suffering binds us more tightly to the One we love. Just to let you know, a little motoring misadventure last Thursday resulted in a fractured right shoulder and five fractured ribs. But my legs are fine. Still, the stick gives me the stability I need when I hike out to get the mail.
Originally Posted by Bank Walker
07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. >50 tumors, marrow involvement.
08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
02/09 2) Relapse.
03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
07/13 3) Relapse, 4) Suspected Mutation.
08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
10/25/14 Clinical trial of Alisertib/Failed - Progression.
01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
02/24/15 Pralatrexate/Failed - Progression. 04/17/15
04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Two dozen tumors + small intestine (Ileum) involvement.
04/22/15 TREC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
BMB reveals 5) Myelodysplastic Syndrome (MDS), a bone marrow cancer.
07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
07/16/15 Total Body Irradiation.
07/17/15 Haploidentical Allogeneic Transplant receiving my son's peripheral blood stem cells.
07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
07/23-08/03/15 Blood nose dive. Fever. Hospitalized two weeks.
08/04/15 Engraftment official - released from hospital.
08/13/15 Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
09/21/15 Acute skin GvHD arrives. DEXA scan reveals Osteoporosis.
09/26/-11/03/15 Prednisone to control skin GvHD.
05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun.
09/16/16 Three skin punch biopsies.
11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
To date: 18 chemotherapeutic drugs in 9 regimens (4 of them at least twice), + 4 immunosuppressant drugs.
I have been chosen to suffer, therefore, I am blessed. Knowing the redemptive value of suffering makes all the difference.
"What is faith? It is that which gives substance to our hopes, which convinces us of things we cannot see"
- Hebrews 11:1
Hate to read about your accident. It sounds so much worse than my piddly little ankle injury. An ambulance showed up at the store yesterday, everyone joked they were there to get me and my family doctor showed up at the store today. He too was accused of making house calls. They have all had lots of laughs at my expense. Yesterday they offered to hunt up one of our wheel chairs for me to get around the store.
Seriously though it is still super sore and swollen. I am trying to walk it off but not having any luck. If it still looks like a long recovery I plan to see the bone doctor Monday.
Yesterday my oldest son and oldest grandson filled in till noon. Today my wife's cousin's son and another friend of our son showed up. They are young and strong. Together they did 2-3 times the amount of work I would have done had I been 100% anyway. They did a great job. They are going to return next Saturday to try and help me get the rest of my plants moved. Then I can concentrate on my mother plants. Again, I am blessed to have so much help during this time of need.
Ouch,PO! So sorry to hear of this! Are you in a lot of pain?
Husband has PTCL-NOS......5 rounds of CHOPE chemo. At the end of chemo in June, they said Al was in remission. We were so happy! Last week, he had his 6 month PET scan and he's STILL in remission. God is good all the time! All the time God is good!
We also have a son, our only child,who was found to have an ependymoma tumor when he was 17. He is now 40 years old and married. He's had 6 brain surgeries, to remove the benign tumor and to try to get the seizure activity which was impossible. He was enrolled in a clinical study to have an experimental neurotransmitter placed. He recently had to have the battery replaced after 6 years. He has not had a seizure in 11 years so far and we are so grateful to God.
When I am afraid I put my trust in you. Psalms 53:6
"Hope is the thing with feathers
That perches in the soul
And sings the tune without the words
And never stops at all