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Thread: So confused. Please help?

  1. #21
    Senior User
    Join Date
    Sep 2016
    NSW Australia
    Sounds great, and don't listen to the doc they not always right
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  2. #22
    Regular User
    Join Date
    Oct 2016
    So just a quick update...mum had a ct scan results on monday..he doctor said theres a change to her chest and the nodule in her lung as starterd to grow...they was gunna have a MDT meeting today to discuss options for mum..but my mum as said no to chemo...this is very worrying i just dont know what to think...does this mean the cancer bk..as her cancer doctor wouldnt confirm this yet

  3. #23
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    I hope the meeting went well. Any update?
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto


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