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Thread: So confused. Please help?

  1. #31
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    I am very sorry to hear your sweet mom has reached this stage Wizzboy. Please be sure that you have a palliative team connect with you and they can assist your mom and you during this time. We are all thinking of both of you.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  2. #32
    Senior User
    Join Date
    Sep 2016
    See Wizzboy i had the swollen Lymph Nodes for over two years and i am still here. Yes you are right here we get CT scans every 3 months, can your Mum maybe get on Immuntherapy? It got not so bad side effects for most people, and palliative just means they can't heal it, i am palliative too and many others for years. So please dont give up yet!!!an she may get radiation ??

    Best wishes Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    Fingers crossed

  3. #33
    Regular User
    Join Date
    Oct 2016
    Hi Petra no mum carnt have Immuntherapy as when mum was having chemo it left her so poorly and also with rheumatoid arthritis so no I have asked they say it will leave her in so much pain..so only thing now mum can have is radiotherapy..which she had 2 months ago..we go today to see the Dr.. but don't think we will know anything as mum as had no ct scan...mum says she feels worse than befor being sick coughing up blood still...its all a worry...thank you all for your replys


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