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Thread: So confused. Please help?

  1. #41
    My deepest condolences, i'm so sorry.
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  2. #42
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Wizzboy I am truly sorry to hear this sad news. May she rest in peace. Hold sweet memories close to your heart and forever there she shall remain. I agree with Lisa you have been amazing at caring for your mum and advocating for her. Time to care for you now. Take special care of yourself.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  3. #43
    Experienced User
    Join Date
    Oct 2017
    Condolences to you and your loved ones may she rest in peace
    Daughter to a rockstar dad with stage 4 lung cancer

  4. #44
    Experienced User
    Join Date
    Mar 2016
    I'm so sorry to read about your dear mam. Life is so unfair. Thinking of you at this heartbreaking time xx


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