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Thread: OCCC and platinum base chemo resistance

  1. #1
    Newbie New User
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    Jan 2017
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    OCCC and platinum base chemo resistance

    Hello,
    I have been diagnosed with Ovarian Clear Cell Carcinoma. I had surgery to remove a very large cyst and just about all my other lady parts 😳
    They also removed several lymph nodes because they were swollen. The only cancer found was in the cyst itself. However, I am staged 1c because there were cancer cells on the outside of the cyst. Because of this I will be going thru chemo. I have read that this particular cancer is platinum based chemo resistant. So, my question is, what other kinds of chemo are there? And has anyone here had this sort of ovarian cancer? And, if so, what sort of chemo did you have and how well did it work. I talk with my doctor about my treatment on Tuesday and I just want to know all the alternatives. I am slow in doing the research as I have been quite tired from the surgery and a bit emotional at times. Thanks for any advice.

  2. #2
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
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    Alberta
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    Hell Artemis,

    Sorry you are having to having to find us and start your new year with all of this. While my hysterectomy was not cancer related I can help a bit with that. So ask away. I just had my surgery at the end of Oct 2016. Did you keep your other ovary? Make sure you follow your restrictions ok? NO lifting! And take your stool softeners! Such fun things we get to talk about huh?

    There are others on here that may be able to help with your other questions and I am sure they will chime in soon.

    This is a very supportive place so you are in good hands. Ask questions or if you need to vent - hey we are good listeners!

    Make sure you rest when you can. You have had MAJOR surgery and you need it!

    Healing vibes sent your way,
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

 

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