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Thread: Protocol for Follow Up?

  1. #1
    Senior User
    Join Date
    May 2014

    Protocol for Follow Up?

    Just wondering about everyone's experience about follow up timelines, etc. Does it vary with the certain types of
    ovarian cancer, their stages, etc.? Or is there a universal follow up timeline for all ovarian cancer?

    In a nutshell, my oncologist told me ultrasounds once a year, blood tests twice a year. Does that sound right?

    In my particular case, mine was caught very early, surgery was June 6th. Took out left tube and ovary; no chemo or radiation needed.
    Went back to oncologist in July and October for verbal follow ups. Blood test in October. Will get blood test and my first
    ultrasound post surgery in late January.

    I asked about if I should get a full body scan or MRI of my surgical site. The oncologist said if my cancer were to come back,
    it would do so slowly over the course of ten years, so too many scans may do more harm than good. Not to borrow trouble but
    I want to stay ahead of this thing without being too over the top.

    Any thoughts?

  2. #2
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    I am bumping your thread Dixie in hopes that we can generate some responses for you.

    I can tell you that a CT scan is approximately equal to that of 150 x-rays. This was confirmed to me by a doctor. Even my husband's onc has backed off on his lung scans stating that continuing scans every six months with only invite cancer from exposure from all the scans.

    Anyone else who have some experience with this to share with Dixie?
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same


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