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Thread: Wait Time

  1. #1
    Newbie New User
    Join Date
    Jan 2017

    Wait Time to See Gynecological Oncologist

    I had a CT scan on Friday and saw a gynecologist this afternoon for an exam and to go over results. I also had blood work done this afternoon. I was given the OC diagnosis. The gynecologist set me up with a very good oncologist in Boston at Brigham and Women's. My appointment with him is a week from tomorrow. I know time is of the essence with this. Is this too long to wait? I have heard of another person receiving diagnosis on Monday and operated on that Friday. It is in the ovary and something at top of stomach and maybe peritoneum?

  2. #2
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    This is hard to answer Serenity. Each case is judge on its own merits too. I am also a poor person to comment as I am in Canada. I am sure others from the US will comment on this for you. Personally I am still impressed.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  3. #3
    Regular User Chaase's Avatar
    Join Date
    Dec 2016
    My dx has now been going on 7 months, initially we thought it was neurological due to the symptoms present, then was told a bio marker was present for gynecological, and during surgery 3 months later adenocarcinoma cells were located in the peritoneal washings. A month later repeat washings showed NED & 2 weeks after that my CA125 levels had risen.

    I have to wait another few weeks to see my surgeons again due to their xmas breaks.... Hope this helps.

    May I ask if you had CA125 bloods done & what level they were?
    2016 - Dx - Unknown Location & Type.

    Further investigation to come.

  4. #4
    Newbie New User
    Join Date
    Jan 2017
    Chaase, thank you for your reply. I just checked my online records this morning. The CA 125 was about 300.

  5. #5
    Newbie New User
    Join Date
    Jan 2017

    Wait Time

    I posted above thinking 8 days was too long a wait. I am waiting for my insurance to approve an out of network doctor at full coverage. If I don't get a "yes" by Monday, I lose my Tuesday appointment. It is all in God's hands, but the waiting is so hard. It could then be another week or two.

    Meanwhile, I am fighting bronchitis.i don't feel like eating much and I do have minor pain since Christmas.i am doing my best to stay hydrated and positive.

    I finally got the copy of my CT scan which shows the left ovary enlarged, the omentum with extra tissue, the peritoneum not right, a cyst on kidney, and a mild to moderate amount of ascites. The latter I was told not to worry about when they showed up late November in an ultrasound and left ovary was fine. This has all happened so fast!

    How long did you wait for your first oncologist appointment?


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