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Thread: Fredlh

  1. #51
    Senior User Doug K's Avatar
    Join Date
    Dec 2014
    Columbus, OH
    Hi Fred,

    I did have fatigue for sure. I went back and read the notes I made during the treatment. I seem to forget lots. Anyway, there was fatigue. I do recall that. I spent a considerable amount of time on the couch, didn't sleep very well, the pump didn't help any.

    I do recall that when I would have to "rally" cause of a phone call or a visitor, the fatigue seemed to take a back seat. Then when the call was over or the person(s) left, I was back on the couch.

    I did try to walk during these days (it was a 12 week treatment, six infusions every two weeks) at a local mall. It was not an easy proposition as I had to get five miles or so, via car, to the mall and walk... maybe only one lap... but I do recall I was able to do it. Again, as I did that, I felt less tired... but then ended up back on the couch. One other observation I recall from the fatigue, sleep didn't help. I could doze off and wake up and feel much the same as I did. I do recall saying to Peggy at one point, I am just tired of feeling so poorly for so long.

    Not sure this is very helpful. There was lots of diarrhea during this time. I took Imodium and two of those seemed to slow things down.

    Hang in there... life improves.


  2. #52
    Top User mojo's Avatar
    Join Date
    Apr 2010
    Hi Fred, just thinking good thoughts for you!

  3. #53
    Senior User Doug K's Avatar
    Join Date
    Dec 2014
    Columbus, OH
    So, Fred, what's happening in your world? Anything happening or just tired?? I'm vacationing with my son and daughters families in FL this week... Great times these!

    Just checking in with you.
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    August 23, 2013 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    August-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    Jan.6, 2014 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2.
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    Sept. 4, 2014 ColonoscopyClear,CT Clear
    Dec. 2014 Follow up BlWk good,CEA .9
    Mar.2015Follow up BlWk continues good, CEA .6
    June 2015 Follow up BlWk good, CEA .7
    Sept2015Followup BlWkgood CEA .7 CT ScanClear NED
    Dec2015SurgicalHerniaRepair surgery, recovering.
    Sept2016Followup BlWkGood CEA .7 CTScanClear NED
    Continue ColoRectal Support Group monthly.


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