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Thread: Zero Club Membership

  1. #1
    Experienced User
    Join Date
    Jan 2017
    Posts
    64

    Zero Club Membership

    Requesting permission to join the Zero Club as long as the hazing is no worse that what I've already experienced. Just received a call from the nurse letting me know my first PSA after surgery was undetectable! And to top it off, this my first day out and about as a big boy...no pads.
    Saw
    Age 61. Sep 2015 PSA 3.1 at yearly physical, DRE normal. No symptoms. Doc requested follow up PSA in 3 months. Rose slightly, 4.2 by Dec 2016.
    Free PSA in Dec showed 7%. Needle biopsy done, 3+4 Gleason. 4 positive cores, PNI identified. All located right side only.
    Radical prostatectomy via Da Vinci done 2/20/17. Pathology report showed no positive margins, no cancer in adjacent tissue.
    3/30/17 - PSA <.1
    7/3/17 - PSA <.1
    12/26/17 - PSA <.1
    2/15/18 - PSA <.1

  2. #2
    No Prostate, No PSA, No Pads! Congratulations Sawdust and welcome to the club.
    Born in 1962
    PSA 6.5, free PSA 10% Oct 2014
    10 biopsies taken Oct 2014
    6 biopsies G 3+3
    2 biopsies G 3+4
    T1c
    Total of 30 mm cancer of 130 mm biopsy samples
    da Vinci surgery jan 7th 2015, nerves spared on one side and "almost all" on other side
    Catheter out jan 23
    Feb 2nd, one shield/day almost continent
    March 17 2015 PSA<0.1
    Final stage pT2, no external invasion, no vesicles invasion, no lymph node invasion, small positive margin
    August 24 2015 PSA <0.1
    February 18 2016 PSA <0.1
    September 12 2016 PSA <0.05
    April 14 2017 PSE <0.05
    October 2017 PSA 0.05....
    Jan 2018 PSA 0.05
    Aug 2018 PSA <0.05
    Feb 2019 PSA 0.06
    Aug 2019 PSA 0.06

  3. #3
    Way to go Saw! You are in!!! Welcome & Big Congrats on all fronts!

    MF
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free = 0.39ng/ml, % PSA Free = 13%)
    Referred to URO MD
    Jan '12: DRE = Positive: "Left induration"
    Jan '12: Biopsy = 6 of 12 Cores were Positive: 1 = G7 (3+4) and 5 = Gleason 6
    Referred to URO Surgeon
    March '12: Robotic RP: Left: PM + EPE. MD waited in surgery for preliminary Path Report then excised substantial left adjacent tissue(s) down to negative margins and placed 2 Ti clips for SR guidance, if needed in future.
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    3 month Post Op standard PSA = <0.1 ng/ml
    1st uPSA at 7 months Post Op = 0.018 ng/ml
    uPSA remains "stable" at 91 Months Post Op: Mean = 0.022 (22x uPSAs: Range 0.017 - 0.032) LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%)
    ED = present

  4. #4
    That is just Awesome!! Congrats! That must be a great feeling!
    Wife posting for spouse - 51, age at dx 48
    06/2016: PSA 6.48
    07/2016: PSA 7.22 FPSA 10% 12 Core Biopsy Negative
    10/2016: PSA 6.30 FPSA 13%
    12/2016: MRI W/COIL PI-RADS 5 with Probable EPE, Bones/LN Clear
    12/2016: Biopsy Two cores 3+4 and Seven cores 3+3
    02/2017: RP Pathology 3+4 Grade 4 component is 5%
    Prostate: 32.7 gm Tumor Volume Estimate: 35%
    No EPE or lymphovascular invasion 13 lymph nodes, Seminal vesicles, vasa deferentia, no tumor present
    High grade prostatic intraepithelial neoplasia, Perineural Invasion: Present
    Tumor involves proximal basilar margin of 2.0 mm Gleason at margin is 3 pT2c,N0,MX,R1
    04/2017: 6 Week PSA <0.01
    05/2017: 3 Month uPSA <0.006
    8/2017: 6 Month uPSA <0.006
    11/2017: 9 Month uPSA 0.014 12/2017: Re-test 0.012
    2/2018: 12 Month uPSA 0.006
    5/2018: 15 Month uPSA 0.014
    8/2018: 18 Month uPSA 0.013
    11/2018: 21 Month uPSA 0.018 12/2018 Re-test 0.021
    SRT: Started 1/2019
    5/2019 27 Month uPSA <0.006
    Decipher 0.75
    100% Dry, No ED

  5. #5
    Great news saw, welcome to the club.
    Allen

  6. #6
    Newbie New User Bowy's Avatar
    Join Date
    Dec 2016
    Posts
    4
    Hey Saw, What an amazing recovery. Congrats. I can only hope that my recovery is similar. I'm about a month behind you, and will have a catheter for 6 more days. I just wonder how being 9 years older than you will effect my progress. I've read not to compare, since everyone is different. So glad to read that you're doing so well.
    John
    DOB: 11/1946
    Remote hx of prostatitis and urethral strictures
    Yearly physicals DRE negative, PSA below 4.0
    2/2013 PSA 4.66 referred to urologist DRE “nothing sinister down there.” Treated urethral strictures with release of strictures and dilatation.
    10/2016 PSA 5.36 referred to younger urologist.
    11/2016 DRE small smooth nodule right lateral apex
    12/2016 13 core prostate biopsy completed. Standard 12 core plus one of nodule
    Gleason Score: 3+4=7
    3/21/2017 Da Vinci Laparascopic Prostatectomy
    Clinical Tumor Stage reported as T3a
    PSA O7/03/2017 - <0.03ng/ml
    PSA 10/16/2017 - <0.03ng/ml
    PSA 11/13/2017 - <0.03ng/ml
    PSA 06/1712018 - 0.04ng/ml
    PSA 09/13/2018 - 0.06ng/ml
    PSA 12/21/2018 - 0.07ng/ml
    PSA 05/30/2019 - 0.12ng/ml
    PSA 08/01/2019 - 0.14ng/ml
    Incontinence: none
    ED: managed

  7. #7
    Moderator Top User HighlanderCFH's Avatar
    Join Date
    Nov 2011
    Posts
    7,235
    Welcome to the most popular & desirable club in the field of prostate cancer!
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Eight annual post-op exams 2012 through 2019: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  8. #8
    Senior User
    Join Date
    Nov 2016
    Posts
    302
    Bowy--

    I'm 4 years younger than Saw and the only place I go without pads is to the shower.

    --Mike
    Age at Dx 57
    PCa History: Father, Uncles, Grandfathers

    Oct 2016 Biopsy 12 core: Adenocarcinoma, Gleason 4+3=7 Grade Group 3) w/PNI
    Left Lateral Base: Suspicious
    Left Lateral Mid: PIN
    Left Base: 4+3=7 (60% pattern 4) Core involvement 30% (5mm)
    Right Base: Suspicious
    Right Apex: 3+3=6 Core involvement 60% (7mm) discontinous
    Right Lateral Mid: 3+3=6 Core involvement 10% (1mm)
    Right Lateral Apex: 3+3=6 Core involvement 10% (1mm)

    Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3=7; Weight: 42g

    Jun 2019 AMS800 installed - Dr. David Rapp - Jul 2019 activated

    ED: Light to moderate

    (Note: All PSA tests prior to Jun19 were done by LabCore)
    PSA_TESTS

    Apr 2016=5.1
    Jul 2016=4.7
    Aug 2016=5.13

    ----Surgery----

    Mar17<0.01
    Jul17<0.01
    Oct17<0.01
    Jan18<0.01
    May18<0.01
    Nov18<0.01
    Jan19<0.01
    Jun19<0.02

  9. #9
    Senior User
    Join Date
    Nov 2016
    Posts
    302
    Congrats Saw!

    I can match you two out of three.
    I have to have pads to hide the pee.

    --Mike
    Age at Dx 57
    PCa History: Father, Uncles, Grandfathers

    Oct 2016 Biopsy 12 core: Adenocarcinoma, Gleason 4+3=7 Grade Group 3) w/PNI
    Left Lateral Base: Suspicious
    Left Lateral Mid: PIN
    Left Base: 4+3=7 (60% pattern 4) Core involvement 30% (5mm)
    Right Base: Suspicious
    Right Apex: 3+3=6 Core involvement 60% (7mm) discontinous
    Right Lateral Mid: 3+3=6 Core involvement 10% (1mm)
    Right Lateral Apex: 3+3=6 Core involvement 10% (1mm)

    Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3=7; Weight: 42g

    Jun 2019 AMS800 installed - Dr. David Rapp - Jul 2019 activated

    ED: Light to moderate

    (Note: All PSA tests prior to Jun19 were done by LabCore)
    PSA_TESTS

    Apr 2016=5.1
    Jul 2016=4.7
    Aug 2016=5.13

    ----Surgery----

    Mar17<0.01
    Jul17<0.01
    Oct17<0.01
    Jan18<0.01
    May18<0.01
    Nov18<0.01
    Jan19<0.01
    Jun19<0.02

  10. #10
    Experienced User
    Join Date
    Jan 2017
    Posts
    64
    Thanks all, but I should clarify that I'm not totally yet "without leakage". You learn to anticipate the different stresses (cough, sneeze, pick up a heavy object, etc) that cause you to leak. If I pay attention, I'm becoming more able to prevent the little leaks, so I was encouraged by that. Have gone all day without a pad (and wearing my boxers finally) and just had a minor leak when I picked up my 4 year old grandson to put him in his car seat. But it was not noticeable to anyone if you get my drift. And yes Bowy, my doctor was surprised and said he still considered this early continence recovery. I did do my Kegels before the surgery so that may have helped.
    Saw
    Age 61. Sep 2015 PSA 3.1 at yearly physical, DRE normal. No symptoms. Doc requested follow up PSA in 3 months. Rose slightly, 4.2 by Dec 2016.
    Free PSA in Dec showed 7%. Needle biopsy done, 3+4 Gleason. 4 positive cores, PNI identified. All located right side only.
    Radical prostatectomy via Da Vinci done 2/20/17. Pathology report showed no positive margins, no cancer in adjacent tissue.
    3/30/17 - PSA <.1
    7/3/17 - PSA <.1
    12/26/17 - PSA <.1
    2/15/18 - PSA <.1

 

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