Researcher, advocate, and caregiver to my son, age 24
July 2016, Diagnosed with Systemic ALCL ALK-neg, DUSP-neg, stage IV, IPI 2, PIT 1, normal LDH, normal B2 microglobulin
Sept 2016, Third round of E-CHOP complete; PET scan NED
Nov 2016, Sixth and final round of E-CHOP completed - Continued to live alone and work two jobs through chemo!
Dec 2016, PET scan NED
March 2017, Experiencing symptoms: cough and stomach issues. Found two small lumps in neck
March 2017, CT scan shows relapse. Confirmed by PET
April 2017, CD-30 confirmed with biopsy; Begin Brentuximab for at least three cycles
May 2017, Biopsy came back with new diagnosis: Classical Hodgkin's! Likely misdiagnosed initially (by three different pathologists)
June 2017, Only partial remission with Brentuximab
July, 2017, ICE x 2 (worst yet). Awaiting PET-CT scan.
August, 2017, very good response, but not CR, moving forward with ASCT. Outpatient at CBCI in Denver.
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