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Thread: Hemangiomas

  1. #1
    Newbie New User
    Join Date
    May 2017
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    2

    Unhappy Hemangiomas

    Hi Everybody
    I had an incidental ultrasound due to high LFT's for the last 3 years. They have found 2 lesions on section 2 & 7 of my liver. The biggest one measuring 2cm both suspicious for mestastic deposits. I also have large fatty liver. I don't drink much & I am overweight but not overly huge. I waited 3 weeks for CT & it came back with the radiologist contradicting himself more then once. Example ( Could be, looks benign mind you left tumour denser then right blah blah). My GP was not happy with this & contacted him for satisfaction that he had got it right. He finally got back to her & he had checked with another radiologist & they had come to the decision that both seem benign & I would have nothing to worry about. GP is monitoring these via regular blood test. I told my GP I was not happy with this conclusion & I hate to sound like a paranoid mess but all these tests were weeks apart & the waiting time was horrible. I guess I should be happy with the end result being benign but I have asked her to see a private heptologist just for peace of mind. She stated this is unnecessary but if I am paying for it shouldn't I have the option of a 2nd opinion. I have always been quite healthy except for 6 years ago when I had stage 1 Melanoma removed from my back. My Father died from this 17 years ago. I have contacted a private Heptologist & she said she is happy to see me as long as I bring all my blood tests results & Ultrasound & CT scan results. I do have a slight pain in my right side & at times I get nauseous/or vomit randomly. Am I being a Hollywood by following this up myself or am I being cautious? I mean not once have I had a biopsy & all reports have been read by GP & radiologist and not a true liver specialist. Thanks everybody I hope someone might have some answers maybe about mis diagnosis or proper testing.
    Thanks
    Ingrid H

  2. #2
    Regular User
    Join Date
    May 2017
    Posts
    28
    June of last year I had an MRI done of my lumbar spine for a disc herniation at my L5-S1. On my MRI report it states I have Hemangiomas on my spine at T11 and L2. None of my Drs ever said anything about it and when I asked my Nuero surgeon about it, he basically blew it off and told me not to worry. I have never heard anyone talk about them and never even seen the word again till just now on your post. I don't know if location of them on different organs or different areas of the body could perhaps make a difference.

    I don't think your wrong in asking for a second opinion, it's your body and if you aren't comfortable with the answer you were given and want to get another Drs opinion, it's your right... peace of mind is priceless. I hope everything works out..

  3. #3
    Newbie New User
    Join Date
    May 2017
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    2
    Thanks for your reply. I will be following up this in my own time due to 2 other people I actually know being told that there liver tumours are benign. One has passed since & the other is in a hospice. Thanks for your positive feedback.

 

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