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Thread: Books on Prostate Cancer

  1. #1
    Moderator Top User HighlanderCFH's Avatar
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    Books on Prostate Cancer

    Here are some good books to read to learn about prostate cancer. Please feel free to add more to the list as you find them. --Chuck

    From garyi
    1) “A Primer on Prostate Cancer, The Empowered Patient’s Guide” by Dr. Stephen Strum and Donna Pogliano; which explains the entire process of diagnosis.

    2) "Invasion of the Prostate Snatchers – No more unnecessary biopsies, radical treatment or loss of sexual potency" by Ralph Blum and Dr. Mark Scholz. Mentioned above.

    3) “Guide to Surviving Prostate Cancer” by Dr. Patrick Walsh (third edition 2012); which may help you understanding options between surgery and radiation. None better.

    4) "The Big Scare: The Business of Prostate Cancer" by Dr. Anthony Houran. Expensive!
    "Saving Your Sex Life - A Guide for Men with Prostate Cancer" by John P. Mulhall, M.D., Director, Sexual & Reproductive Medicine Urology Service, Memorial Sloan-Kettering Cancer Center

    Also a very amusing article from Men's Health, "I Want My Prostate Back", : http://www.menshealth.com/health/cop...rostate-cancer

    "You Can Beat Prostate Cancer", and you don't need surgery to do it. (2006) by Robert Marckini. So-So read.
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  2. #2
    Thanks, Chuck. The Men's Health link did not get to the article. This link works:

    http://www.menshealth.com/health/cop...rostate-cancer
    DOB: May 1944
    In Active Surveillance program at Johns Hopkins
    Strict protocol of tests, including PHI, DRE, MRI, and biopsy.
    Six biopsies from 2009 to 2019. Numbers 1, 2, and 5 were negative. Numbers 3,4, and 6 were positive with 5% Gleason(3+3) found. Last one was Precision Point transperineal.
    PSA 4.4, fPSA 24, PHI 32
    Hopefully, I can remain untreated. So far, so good.

  3. #3
    Top User garyi's Avatar
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    About as definitive and objective read as I have found is: "2017 Annual Report on Prostate Diseases", 118 pages, Harvard Health Publications. Updated yearly. www.health.harvard.edu

    Another yearly publication, but not as balanced as the one above, how can you beat Harvard , is "Prostate Cancer and other Diseases of the Prostate", Men's Health Advisor in conjunction with Cleveland Clinic, 96 pages.
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19, .081 9/19
    We'll see....what is not known dwarfs what is thought to be fact

  4. #4
    Top User garyi's Avatar
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    Johns Hopkins Patients' Guide To Prostate Cancer
    by Arthur L. Burnett, 124 pages, 2011


    The Whole Life Prostate Book: Everything That…....
    by Dr. H. Ballentine Carter and Gerald Secor Couzens 464 pages, 2012

    Dr. Peter Scardino's Prostate Book, Revised Edition: The Complete Guide to Overcoming Prostate Cancer, Prostatitis, and BPH, by Peter T. Scardino, and Judith Kelman , 592 pages, 2010

    The Great Prostate Hoax: How Big Medicine Hijacked the PSA Test and Caused a Public Health Disaster, by Richard J. Ablin (the man who discovered PSA) and Ronald Piana, 274 pages, 2014,
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19, .081 9/19
    We'll see....what is not known dwarfs what is thought to be fact

  5. #5
    My favorite is Klotz's Active Surveillance for localized prostate cancer. It is nearly a medical journal but has a great scientific approach to each topic. Denis
    65 YO healthy man
    PSA had been 4.1/2 for a couple of years,
    PSA 5/1/17 4.6,
    Multiparametric MRI, 5/15/17 showed lesion
    13 core needle biopsy 3 cores positive 3+3 and one positive in the lesion, may be overlap
    All cores less than 30%
    8/22/17 - second opinion pathology shows a small amount of (3+4) in one core, < 5%, ordered decipher to inform next steps
    9/27/17 -Decipher test shows intermediate risk so now exploring treatment options.
    2/6/18 - completed HDR BT
    5/3/18 Post HDR BT PSA 1.3
    9/18/18 PSA 1.2
    4/1/19 PSA 1.0 Testosterone 475
    Thanks, Denis
    "One day at a time"

  6. #6
    Also, for those considering surgery, "Man to Man" by Michael Korda. The author is a respected writer and publisher who had RP with Dr. Patrick Walsh in 1993, at the apex of Walsh's career.

    There were unanticipated problems, which Korda discusses in candid, intimate detail. Also, how he and his wife eventually dealt with those challenges.

    While written in 1996, this book is still very relevant to surgery patients. It is available on Amazon and eBay.
    DOB: May 1944
    In Active Surveillance program at Johns Hopkins
    Strict protocol of tests, including PHI, DRE, MRI, and biopsy.
    Six biopsies from 2009 to 2019. Numbers 1, 2, and 5 were negative. Numbers 3,4, and 6 were positive with 5% Gleason(3+3) found. Last one was Precision Point transperineal.
    PSA 4.4, fPSA 24, PHI 32
    Hopefully, I can remain untreated. So far, so good.

  7. #7
    Moderator Top User HighlanderCFH's Avatar
    Join Date
    Nov 2011
    Posts
    7,206
    Here is an interesting article about prostate cancer that I got today from Web MD.

    https://www.webmd.com/prostate-cance...bO9j0WnT5B8%3d
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  8. #8
    Quote Originally Posted by HighlanderCFH View Post
    Here is an interesting article about prostate cancer that I got today from Web MD.

    https://www.webmd.com/prostate-cance...bO9j0WnT5B8%3d
    Chuck, I read that article and have serious questions about two of their statements:

    "About 50% of men diagnosed with local prostate cancer will get metastatic cancer during their lifetime."
    and
    "On average, 8 years pass from the time a man is first diagnosed with prostate cancer to the discovery that it has become metastatic."

    Clearly, this cannot include Gleason 6 patients, who are about 65 percent of newly-diagnosed men. According to them, I should be writing my will now. IMHO, this article is misleading by failing to specify the patients' staging that is applicable to their advice.
    DOB: May 1944
    In Active Surveillance program at Johns Hopkins
    Strict protocol of tests, including PHI, DRE, MRI, and biopsy.
    Six biopsies from 2009 to 2019. Numbers 1, 2, and 5 were negative. Numbers 3,4, and 6 were positive with 5% Gleason(3+3) found. Last one was Precision Point transperineal.
    PSA 4.4, fPSA 24, PHI 32
    Hopefully, I can remain untreated. So far, so good.

  9. #9
    Moderator Top User HighlanderCFH's Avatar
    Join Date
    Nov 2011
    Posts
    7,206
    The article clearly was not written as an in-depth detailed piece about prostate cancer and, no doubt, covered things in general only.

    Just an interesting piece for those who want to check it out.
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  10. #10
    Not a book, but a periodical, the USTOO hot sheets are posted online as well as circulated in paper form.

    A lot of interesting articles about different new treatments and studies that are being done throughout the World of Prostates.
    http://www.ustoo.org/Read-the-HotSheet-Newsletter#nov
    Nov 2013 PSA 4.2 Biopsy Jan 2014- 1 core positive, 20% Gleason 6, doctor highly reco'ed robotic RP - 2nd opinion at UPMC April 2014, put on active surveillance. 2nd biopsy Feb 2015, results negative. PSA test Feb 2016, 3.5. 3rd Biopsy Feb 2016. 3 positive cores less than 5%, Gleason 6. Octotype DX done April 2016, GPS Score of 24--rated "Low risk". PSA test 8/2016, 3.2. PSA test 1/2018 2.2 (after 7 months of proscar) PSA test 7/2018 2.3, PSA test 7/2019 2.0


    DOB 1956, in Pittsburgh, USA

 

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