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Thread: USA Patient Advocate Organization (Free)

  1. #1
    Moderator Top User ddessert's Avatar
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    USA Patient Advocate Organization (Free)

    The Patient Advocate Foundation is a charitable organization that offers free help with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - Radiation+Xeloda, 25 days in 5 weeks
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-Nov 2017 - NED
    Mar 2013-present - NCT01088789
    @pancanology

  2. #2
    Newbie New User
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    I can't say enough nice things about PAF and all the other grants helping with copays. Here are a few others if you come across anyone in need:
    PANF - Patient Access Network Foundation
    HealthWell Foundation
    PSI - Patient Services Inc
    CancerCare Copay Foundation
    Leukemia and Lymphoma Society

    I'm relatively new to CancerForums, but I plan on posting a good article for US patients seeking copay assistance eventually. I see a lot of members outside the US and my expertise is small there, unfortunately.

 

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