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Thread: Almost 5 years NED

  1. #11
    Moderator Top User ddessert's Avatar
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    I'm at Johns Hopkins and just talked with the doctor about their reading of the scans. They call the 2mm spots diffuse and consistent with a slight infection. They call it a good scan result and I should go out and celebrate.

    Lets go with that answer.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - Radiation+Xeloda, 25 days in 5 weeks
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-Dec 2016 - NED
    Mar 2013-present - NCT01088789
    @pancanology

  2. #12
    That answer sounds good to me. Pop that cork!
    February 2016- diagnosed with PC
    March 2016- inoperable due to arteries, also liver mets suspected
    March 2016-January 2017 -Gemzar/Abraxane
    February 2017 surgery-PC tumour and liver mets removed at same time

  3. #13
    Experienced User
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    Wonderful news David! Keep it up.
    Many thanks for attending all of the conferences you do. We are so fortunate to have you looking out for us.

  4. #14
    Moderator Top User BobInBonita's Avatar
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    David,

    That is the best news anyone could hope for. Congratulations!

    Bob
    7/12 DX stage 3 pan can (adenocarcinoma) @ 65 - borderline resectable
    8/12 - 10/12 Chemo (GTX) & Stereotactic Radiation
    12/12 Whipple - R0 margins, 2/29 nodes pos.
    1/13 - 5/16 Vaccine clinical trial - randomized to control group - vaccine showed no benefit
    2/13 - 8/13 Gemzar for 6 months
    Quarterly scans - no evidence of disease to 10/14 - spot on lung being watched - possible infection 2 months on antibiotics
    3/15 - spot larger - probable met - surgery planned
    4/15 - PET prior to surg - recurrence & lung mets - Surgery cancelled - EUS w/ FNA showed adenocarcinoma - Stage 4
    5/15 - 9/15 Folfirinox @ reduced dosage - Stopped treatment after 11 infusions due to neuropathy
    10/15 - 8/16 maintenance 5-fu every other week
    8/16 - stable disease on both CT and PET/CT - chemo holiday while other treatments explored
    9/16 - lung biopsy confirms pan can met,
    10/16 -NanoKnife to pancreatic bed -PET after Nano showed new met in hilar lymph nodes - SBRT to both lung & lymph
    4/17 - PET/CT showed significant disease progression, multiple lung mets, pancreatic bed tumor has grown
    5/17 - Started hospice care - striving for acceptance

    Stay busy and live life to the best of your ability.

  5. #15
    Experienced User
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    Great news David! Go out and celebrate like the doctor ordered.
    Judi
    9/16-68 year old husband diagnosed with Stage 3 unresectable pancreatic cancer
    9/16-12/16- Folfirinox 6 rounds of treatment
    12/16-CT scan, no signs of disease and normal tumor markers
    1/17-2/17- IMRT radiation 28 treatments with Xeloda
    3/17- CT scan, no signs of disease and normal tumor markers
    5/17- CT scan, no signs of disease
    7/17/17-Whipple
    7/31/17- Pathology report: "No residual tumor, complete response to treatment, grade 0. T0N0M0. NED

  6. #16
    Moderator Top User jorola's Avatar
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    Alberta
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    Snooping over here - glad I did - congrats my friend! Do go celebrate!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  7. #17
    Regular User
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    Cape Cod, MA
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    Yeeaaah! This is great news David! Brigitte
    __________________________________________________ ___________________
    1/12/2016 No symptoms except ongoing fatigue; blood test revealed elevated liver enzymes
    1/18/2016 Liver ultrasound revealed enlarged bile duct
    1/20/2016 MRI confirmed enlarged bile duct
    1/21/2016 ERCP and placement of a temporary stent
    1/28/2016 CT-Scan revealed a lesion on the head of pancreas
    2/09/2016 2nd ERCP + EUS + FNA
    2/12/2016 DX Borderline resectable pancreas ductal adenocarcinoma - Stage 3 @ 61
    2/24/2016 FOLFIRINOX 3 cycles (6 infusions)
    5/12-16/2016 CYBER-KNIFE Stereotactic Radiation 3 sessions
    6/16/2016 WHIPPLE + portal vein and right hepatic artery reconstructions - 0/19 nodes pos - no mets. Restaged to 1A
    8/31/2016 FOLFOX for 3 cycles (6 infusions)
    09/2016 Enrolled in Know Your Tumor - PANCAN.org
    11/4/2016 Quaterly monitoring for 2 years with CT Scan. CT Scan clear.

  8. #18
    Senior User
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    What great news, Dave! So glad to hear that!

  9. #19
    Newbie New User
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    Texas
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    Such a great news David! Really happy for you, Salud!
    Dec.2016 Stage IIA PDAC - 1.8cm tumor, spread to fat surrounding. - Resectable, CA-199=165
    Dec.2016 PPPD Procedure - R0 Margin, 0/5 Lymph Nodes, CA-199 down to 29
    Feb.2017 Chemo started - (D1,D15 Gemzar) + (D1-D14 S1)
    Jul.2017 5 rounds of Chemo completed - 1 more to go, CA-199 =24

  10. #20
    Senior User
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    Ontario, Canada
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    Oh Thank Goodness! I'll still keep you in my prayers! xxSheryl

 

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