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Thread: Almost 5 years NED

  1. #41
    Moderator Top User ddessert's Avatar
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    More on CTC test:

    One alternative to having a tumor biopsy (in case there's difficulty) is a liquid biopsy. It tests the blood stream for Circulating Tumor Cells (CTC's) but it's absolute reliability is often suspected. There was a study sponsored by the company that does liquid biopsies, Foundation Medicine, comparing them to surgical biopsies and they saw ~95% agreement in mutations. But for those of us who can't have a biopsy, it may be better than nothing. 2 week turnaround times.

    I'm sure that Dr. Beg knows much more about this than I do...
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - Radiation+Xeloda, 25 days in 5 weeks
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-Nov 2017 - NED
    Mar 2013-present - NCT01088789
    @pancanology

  2. #42
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    Yes, it removed the lung tumors by taking wedge shaped samples. The tool cuts and staples the area at the same time. Required an overnight hospital stay and he came home with a drainage tube. Pretty painful but he recuperated fairly quickly. We chose it because it is more accurate than needle biopsy.

  3. #43
    Kstacey, forgive me if you've already included this information somewhere, but can you tell me where you had the wedge biopsy done, and how many tumours they were dealing with? Thanks so much. Oh, and who was the surgeon? Thanks!
    February 2016- diagnosed with PC
    March 2016- inoperable due to arteries, also liver mets suspected
    March 2016-January 2017 -Gemzar/Abraxane
    February 2017 surgery-PC tumour and liver mets removed at same time

  4. #44
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    The surgery was done at UT Southwestern in Dallas by Dr. Kemp Kernstine. He removed 2 small spots in the right lung. There is still 1 on the right lung that a PET scan confirmed is cancer. The surgeon did not suggest removal of the left one. My husband will start chemotherapy soon. We are still deciding which type of chemotherapy to try first.

  5. #45
    Thanks so much! I wonder why the doctor removed two but did not recommend removing the third. It seems if it can be done, it would be good to take it ALL out.
    February 2016- diagnosed with PC
    March 2016- inoperable due to arteries, also liver mets suspected
    March 2016-January 2017 -Gemzar/Abraxane
    February 2017 surgery-PC tumour and liver mets removed at same time

  6. #46
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    The surgery was not considered curative. It was used only as diagnostic. The two in the right were close to each other so he was easily able to remove both. Kernstine said he would never operate in both lungs at the same time anyway.
    The rationale for not removing the left one is that there is probably more cancer that is too small to see and it needs to be treared systematically with chemotherapy. To use David's words , they don't want to play "Whack-a-mole"

 

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