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Thread: Getting ready for treatment

  1. #21
    Moderator Top User jorola's Avatar
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    May 2014
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    1,715
    The temptation is crazy but I agree best to wait to have a dr explain it so you don't misinterpret something. Think if you read it the wrong way and then Dr told you differently (no matter if you thought it was good but it was actually bad or vice versa) and how you would react. Yikes - I would be a mess personally. Best not to mess with the head like that.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

  2. #22
    Senior User
    Join Date
    Jun 2017
    Posts
    120
    Thank you all for the good advice. I am going to wait till next Thursday's doctor appt. Will let you all know (Yikes! I'm nervous but I better get used to it !)

  3. #23
    Senior User
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    Jun 2017
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    120
    So, had doctor's appt today and everything is Good! She said the tumor in my left lung has shrunk alot and will continue to shrink so no further treatment is needed. The nodule in my right lung is the same and since it was never diagnosed as cancer she just wants to keep an eye on it. So, all in all, it is all good and will see her again in 3 months. Right now I am on a mental high but so many emotions are running through my head. I am so thankful but feel like I dodged a bullet. Cancer really, really puts things in perspective.

  4. #24
    Moderator Top User jorola's Avatar
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    May 2014
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    Congrats on the great news! You are very right - one good thing cancer can do is help put things into perspective.
    Live, Laugh, Love
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

  5. #25
    That's great news Linda, i'm so happy for you, now keep on living not thinking all the time.
    Hugs Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  6. #26
    Experienced User
    Join Date
    Oct 2017
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    68
    You are a rockstar Linda!
    Daughter to a rockstar dad with stage 4 lung cancer

  7. #27
    Senior User
    Join Date
    Jun 2017
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    120
    Thanks for all your good wishes. It is so nice we all here for each other!

  8. #28
    Senior User
    Join Date
    Dec 2012
    Posts
    296
    Hello Linda,
    Isn't it wonderful to sleep well!!
    No Worries!
    zim

  9. #29
    Senior User
    Join Date
    Jun 2017
    Posts
    120
    Just wanted to say Happy New Year to everyone! Cancer is one heck of a journey, so sad, so exhausting but at times very up lifting and eye opening. A "mass" was found in my left lung one year ago, January 2017, so began my journey. I made up my mind that January day that cancer was not going to define who I was. I have caused my family alot of pain, I think they took my cancer diagnosis harder then I did, but by my being strong and accepting that cancer is just a part of my life now, we're all getting through this really good. So, I am very, very lucky to have the family that I have. Looking at me, you would not know I have cancer but in my mind and in my families minds it's there, "She has cancer" so maybe cancer has defined who I am.
    Anyway, to all my friends here, together we are strong, you all have made me strong!

  10. #30
    Happy New Year to you as well.

    mike
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

 

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