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Thread: Getting ready for treatment

  1. #81
    Linda

    Keep it up! Great start to the new year.

    mike
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

  2. #82
    Senior User
    Join Date
    Jun 2017
    Posts
    115
    Had another PET scan after 12 weeks of immunotherapy and am tumor free. My oncologist decided to only start giving me 1 immuno drug now as the 2 drugs together had alot of side effects and already feel more energy. Will still go every 2 weeks for the 1 infusion and that may even be extended eventually. We have all been there,where it feels too good to be true and truthfully this was the worst winter of my life with the tiredness, vision problems etc. Even though I was cancer free, the side effects took some of the joy out of it. They are finding out that certain immunology drugs are causing vision loss in some patients (not good). My doctor is being carefull and thinks with only 1 drug I will feel alot better. She says I can always go back on 2 drugs and it is important to consider the quality of life.
    Thinking of you all,
    Forever thankful,
    Linda

  3. #83
    Still good news Linda. Sire SE are bad but you're alive. So what drug you get now?
    Hugs Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  4. #84
    Senior User
    Join Date
    Jun 2017
    Posts
    115
    Petra,
    I am on Opdivo which I think is what you are on. I go every 2 weeks to get an infusion. How often do you go?
    Hugs, Linda

  5. #85
    Yep , every two weeks also!
    You know, i love to be a NED twin
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

 

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