A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 4 of 4

Thread: Eat & keeping weight on during chemo

  1. #1
    Newbie New User
    Join Date
    Jun 2017

    Eat & keeping weight on during chemo

    Hello all;
    I've always had a very good appetite. Kept up with a guy in his twenties, I was 54 at the time.
    Anyway, I used to do some body building. Nothing great, just bulked up some. Everybody who works out, and many others know about whey protein.
    There is another called Casein Protein. Whey is fast digested, gets into your system in about 40 minutes. Casein is slow & stays in your gut for about 7 hours.
    On days when my appetite was down and I couldn't eat because of nausea etc I made a Casein shake. I'd sip on it through the day. Vanilla Casein flavored up with a scoop of ice cream & a banana or other fruit of choice.

    After dropping some weight is when I started the Casein. Doc was surprised when I actually gained some weight back. He asked what I was doing. It worked because when you're body needs nutrition and you don't feed it. It'll consume muscle and fat. (Muscle is actually an easier conversion to energy then fat so when your body is 'starving' or hungry for energy you loose proportionally more muscle then fat.)
    If you have something in your gut, food or in this case casein, your body will go for that before consuming it's self.

    I know what your thinking, Cancer likes sugar so why add sweet ice cream. Why not yogurt? 1st I, rather my wife, read the labels and found that frozen Yogurt actually has more sugar. She shopped for the lowest sugar content ice cream. 2nd; On days where all I had was the casein protein shake... Didn't really worry about a scoop or two of ice cream. (Never more then two though.) Yea, I watched my sugar intake. reduce to pretty much zero. But I've always believed in a 90% rule. Whatever your goal if you're following your regiment to a 90% level 90% of the time. 10% isn't cheating. It's living. It's not even cheating if you drop below 90%. Staying below 90% is falling off your regiment. Keep it real, 90% and you'll live life with success.
    I wish all luck with your fight. I got lucky and won for now. NHL will likely return. it's considered treatable but not curable. Either way, I'm here now and alive. So are you.

    Fight for life and don't forget to live during the battle.
    Best of luck to all.

  2. #2
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    The caveat here is that all human cells, normal and malignant, absolutely require sugar as a fuel. We are designed that way. Your stored body fat becomes blood sugar when needed. Less dietary sugar is probably good, but you cannot eliminate it, or your body will begin to consume itself in the sugar conversion process. The debate rages over types of sugar, and there may be some credibility there. But, this type of reasoning also goes for the alkaline water bunch. Your body, as with sugar, maintains a necessary balance of alkaline to acid for normal cell division. Go outside of that and good cells start dying off - cells that form your organs and immune system. Oh, some cancer cells die too, but isn't that simply replicating chemotherapy, but with only a guarantee of ill health ahead?
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  3. #3
    Newbie New User
    Join Date
    Jul 2017
    I make sure to eat healthy. My husband told me about so that I can make healthy and nutritious recipes. I am sure that this will keep the body fit and healthy. We need to eat healthy and this will also shed the tension of weight gain.
    Last edited by lisa1962; 08-04-2017 at 11:19 AM. Reason: Link removed per forum policy

  4. #4
    Newbie New User
    Join Date
    Feb 2016
    Yes, the "cancer likes sugar" thing is alt-med mindless gibberish. ALL cells "like sugar." That doesn't mean low sugar intake will stop/slow cancer, but it is a good idea from a general health perspective.

    Anyway, as for weight gain, drinks like Ensure/etc are one thing, also many don't realize Carnation Instant Breakfast drinks pack a lot of calories as well, and protein shakes. And while I certainly wouldn't advocate doing this a lot, the occasional cheeseburger or pizza certainly isn't light on calories, if appetite loss isn't preventing it (or even if it is, it's worth fighting). g/l


Similar Threads

  1. To eat or not to eat red meat?
    By Elyana in forum Nutritional Suggestions
    Replies: 10
    Last Post: 02-21-2016, 07:01 AM
  2. Food you can eat during Chemo Stage 4 PC
    By Dima2015 in forum Pancreatic Cancer Forum
    Replies: 10
    Last Post: 06-13-2015, 02:14 AM
  3. Help keeping food down/gaining weight?
    By bpsmith1 in forum Pancreatic Cancer Forum
    Replies: 4
    Last Post: 08-19-2014, 09:34 PM
  4. Foods to eat during chemotherapy
    By suppppkels in forum Lung Cancer Forum
    Replies: 9
    Last Post: 04-12-2014, 09:16 AM
  5. What to eat for weight loss?
    By KathleenC in forum Pancreatic Cancer Forum
    Replies: 3
    Last Post: 10-06-2011, 03:06 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts