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Thread: Full Staging Final Diagnosis

  1. #11
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    Went camping in Algonquin Park this weekend and although the weather wasn't on our side, I was happy to get a camp trip in before the surgery and convalescence. When I was coming back home I noticed that my GP left me a personal message stating that he has been included in all the test results and is wishing me well and would like to see me after the surgery. It made me feel really good about the health care we are being provided.

    Surgery is coming up fast and so many things to do before I can't do them. Who said being retired can be boring...it is all in the way you approach it right?

  2. #12
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    Tomorrow is the big day. Hopefully all goes well with the surgery. When I received my initial diagnosis back in May and the Dr. said there was a 5% chance that the cancer had spread, we were going to delay the surgery until the Fall so that I could enjoy Summer activities. Now I can't imagine waiting that long to find out for sure. Last surgery I was really scared as I never had major surgery before. This time I have a better idea of what to expect.

  3. #13
    Moderator Top User jorola's Avatar
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    Will be thinking of you. All the best and let us know how you are doing when you feel up to it. Make sure you res and listen to dr's orders
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  4. #14
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    Thanks Jodie. I appreciate this site because I feel less alone and scared. Hopefully my last post on this thread will be good results.

  5. #15
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    Surgery went well. I even got an unexpected 'tummy tuck' as my previous scar was reedy and hard. Follow up with ONC is scheduled for September 22nd.

  6. #16
    Moderator Top User jorola's Avatar
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    NICE! lol gotta love a surprise like that! Good to hear it went well. Just remember to actually follow dr's orders now ok? Trust me you will pay for it if you you don't!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  7. #17
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    Had lot more taken out this time, does that mean it will be a harder recovery? I am actually feeling much better post-operative than last time so it is giving me a false sense of my capabilities. 10 lb lift limit is like a bag of potatoes, right?

  8. #18
    Moderator Top User jorola's Avatar
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    I would agree if may be giving a false sense. Remember this is major surgery. They say 10 lbs correct. A bag of potatoes? Well depends on the size of course. Honestly right now stick to a jug of milk weight for the next week. Build from there. Walks lots - yes that is good for recovery and getting and keeping bowels moving again. Do something as you are able but then rest after. I overdid it and paid for it. A couple of times, oi!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  9. #19
    Experienced User
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    Jul 2017
    Posts
    60
    I really don't want to have to go back for more work so I promise to take it easy. This weekend I went 'full gimp mode' because my husband was there to watch and take care of me. He goes back to work on Monday and he already told me he was going to be like a mother hen. He would like me to keep him updated on my status throughout the day. Seems a bit much but I really can't blame him as he knows me too well. I am lucky to have the support of my sister to help out with chores and keep me quietly 'entertained'. The weather is starting to get a bit drier now so I am looking forward to relaxing outside and listening to nature (2.5 acres treed property). My hubby even put together the Adirondack Chair that I got myself as a 'retirement' present.

    I am experiencing quite a bit of bloating since the surgery so I am trying to get that under control. I found some nice ginger gel-type candies that seem to help. Things are moving through but very slowly. I usually try to compensate by increasing my walking but I think that I over did it last time. Hospital recommended stool softeners, have you ever tried them?

  10. #20
    Moderator Top User jorola's Avatar
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    May 2014
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    LOL sounds like your hubby does know you. Good you are taking it easy. Yes relax in that beautiful chair - what a good hubby! Just remember to walk lots though. This will also help with the bloating. By the way, ginger ale can actually be constipating. Just and FYI for you if that becomes a problem you may need to cu ginger ale out. I know ginger ale is my go to drink!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

 

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