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Thread: Full Staging Final Diagnosis

  1. #31
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    I suffer from low blood pressure, but to excerberate the issue I also suffer from BPPV (positional vertigo). I never know when it comes, in fact I can't remember the last bout I had. Can last for hours or days. ENT Dr gave me exercises I can do to help, but since it requires a lot of rolling in bed I'm not able to perform them right now. I just need to be careful when changing positions and moving my head. Fairly easy with my 'laid back' recovery though. It was just that the timing was weird, almost like my body was saying 'Don't leave me...who is going to take care of me?' I have such a great support system so there should not be any concerns there. Poor Brian needs a rest, he has been taking care of me on and off since April.

  2. #32
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    Hello still a few weeks out before I get my final results (tick, tock). I have been preparing for my next visit with my ONC by reading up on adjuvant therapy and compiling my questions. I have heard not to put too much weight into stats, but I wondered what I would do if the Dr told me that the stats with treatment or without treatment are fairly comparable. Would I take the treatment anyway or are the side effects more than what I can handle for such little benefit? I am feeling guilty that the lastest results will come back favorable (good thing), yet I have put so many people in such a state because of my circumstances. Even if the 'worst is over', my life has changed forever since my initial diagnosis. It is unfortunate for some (me included) that to really appreciate life and those around you that cancer put things into perspective. I'm hoping that I will always remember that I can do whatever I set my mind to, regardless of how difficult it may be. Where I am scared about treatment and how it may affect me, I am looking at it as a challenge I can overcome. Maybe to help put a positive spin on it I'll give it a name like 'CHEMO CHALLENGE 2017' (nah....gotta work on something better than that). Also learned that if I thought it was tough waiting for my final diagnosis that I better 'work up' to the time it may take for the treatment sessions. I never realized that they could last so long. Sorry I digress. Until next time.

  3. #33
    Moderator Top User jorola's Avatar
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    Waiting is the worst hun but not surprised that you would find a way to put that positive spin on it
    The question of taking treatment vs not is a hard one. I recommend a deep discussion with your dr. It is a decision you will have to make. I will say be careful when looking at stats are they are often based on info from old info - from 5 or even 10 years ago so it may not include those who have had more recently developed treatments. So make sure you include that in your conversation with your dr.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  4. #34
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    Jodie thank you for the wise words. I will incorporate your suggestion into my long list of questions. Thanks for your continued support during this drawn out process. It is people like you that help me keep things in perspective and help keep a positive attitude.

  5. #35
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    Thanks to all for helping me through this very interesting phase in my life. I do appreciate all the support and wise words and encouragement. It seems kinda surreal to say this but the final diagnosis is in.

    I am very happy....no elated...relieved...appreciative...lucky...to say that I am in the clear. Wish I could say that everyone could be as lucky as I have been. You never know where life will take you so my final words are: It's never over until its over. Keep positive and find the things that make you happy in life. For some of us, that doesn't require a lot of effort.

  6. #36
    Moderator Top User jorola's Avatar
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    Well hun that is some freak awesome news!!! Congrats!!!!!
    Fully understandable you are all those emotions and more. I wish you love, happiness and health!!!!
    Big hugs,
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

 

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