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Thread: Laugh of the day - me and my fall down the waterfall...

  1. #1
    Moderator Top User jorola's Avatar
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    Laugh of the day - me and my fall down the waterfall...

    So I am checking out these super cool falls; standing at the top:
    [IMG][/IMG]

    And I slip and fall down there:
    [IMG][/IMG]

    And land down here at the bottom (that's me about 40 ft up at the top):
    [IMG][/IMG]

    Those pics were taken the next day after several Tylenol 3's, bruises and a bump on the head. Here's the pic I took right before I slipped:
    [IMG][/IMG]
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  2. #2
    Super Moderator Top User po18guy's Avatar
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    You really should take up motorcycle riding! There are those who do not grasp that life itself is risky, but a life without risk is barely living, flavorless. Had this not occurred, would it have been as memorable?

    Glad that the river survived you!

    And vice versa...
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TREC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) Myelodysplastic Syndrome (MDS), a bone marrow cancer.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measureable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin GvHD arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    To date: 18 chemotherapeutic drugs in 9 regimens (4 of them at least twice), 5 salvage regimens, 3 clinical trials, 4 post-transplant immuno-suppressant drugs, the equivalent of 1,000 years of background radiation from scanning from 45+ CT series scans and about 24 PET scans.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow aspiration/biopsy reveals 2% cells with 20q Deletion, a form of Myelodysplastic Syndrome, yet a different form than in 2015. Active surveillance is the course of choice. Two sub-types of lymphoid malignancies and two of myeloid malignancy lend a certain symmetry to the journey.

    Believing in the redemptive value of suffering makes all the difference.

  3. #3
    Senior User Dead Man Walking's Avatar
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    Lifelong resident of Lake Woebegon (Minnezotah), moved to Louisiana last November
    Posts
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    Ah yes, the agony of de feet!! I was a hang glider pilot from 1978 to 1993, and I had one hellacious crash in 1982 when I stalled an inboard wing tip, lost control, and went back into the hill at 45 degrees down and 45 degrees banked. They say my body bounced three times on impact, and the oldest pilot on the hill said he had never seen anybody hit that hard and live. As a result of my entire rib cage being heavily compressed by the crash, two of my ribs snapped off on the back side! Now I have an old, boring life with a case of refractory AML that went off and got drunk in a cheap bar, and can't seem to find its way back to my location..... The suspense is killing me......
    Last edited by Dead Man Walking; 08-07-2017 at 09:29 PM.
    05/6/16 2 pre-op physicals for knee surgery show low WBC & RBC
    05/22/16 [Birthday] Results of BM biopsy are AML 25% blasts CD34 with 3:3 mutation, INTERMEDIATE risk
    05/30/16 Undergo 7-3 treatment
    06/??/16 TSHTF!! 7-3 doesn't touch AML, but knocks out immune system, infections nearly kill me. Blasts 65%
    07/04/16 Diagnosis now Refractory AML. [:tombstone:]
    Six 4 week cycles of azacitidine, 21 injections over 7 days with 1.5" long needle into gut AND below navel.
    11/05/16 Wife & I move to LA, North Shore Lake Ponchatrain - Infusion center 4 minutes away.
    Protocol 15 injections for 5 days M-F with 5/8" 25 ga. needle Huge increase in quality of life.
    12/28/16 BM biopsy shows CD34 cells 6.9% above background level.
    Three 5 week cycles of azacitidine, . Life is good. Azacitidine is minor annoyance.
    04/16/17 BM biopsy shows CD34 12% above background, cycle dropped to 4 weeks.
    7/20/17 Diagnosis changed to "indolent leukemia"...

  4. #4
    Top User
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    You are so funny,DMW! I enjoy your posts. I have only fallen once but did it up good. I broke my leg when I fell off a ladder painting the kitchen. Ended up on life support for 5 days later had hip and knee replacement. Knee replacement laughs at me and I am now disabled with a walker. But it doesn't stop me from caring for Al.
    At least the river cooled you off?
    67 year old husband diagnosed with Periphial T Cell Lymphoma Feb. 2015
    5 rounds of CHOPE chemo put him into remission for 2 years....
    June 2017 Relapse....radiation planned
    Develops ITP, Low platelets....Hospitalized 3 days to be given Gamma Gloublin....discharged....gave prednisone but forgot to give scripts for that and Klonopin....results in rage from Prednisone.....second time this has happened. Had one instance of it during previous chemo.
    ITP recurs....4,000 platelets
    New Oncologist called in that specializes only in Lymphoma. He changed Al to Decradon (Sp?), a steroid. Platelets went up to 173,000 but as of August 16 went down to 23,000. One more infusion planned in a week then PET scan and Dr. visit......
    Also caregiver to our 40 year old son who had a benign ependymoma tumor removed when he was 14 years old. 6 brain surgeries.
    Thank you God for all your blessings! 🙏❤️🙏

  5. #5
    Quote Originally Posted by jorola View Post
    So I am checking out these super cool falls; standing at the top:
    [IMG][/IMG]

    And I slip and fall down there:
    [IMG][/IMG]

    And land down here at the bottom (that's me about 40 ft up at the top):
    [IMG][/IMG]

    Those pics were taken the next day after several Tylenol 3's, bruises and a bump on the head. Here's the pic I took right before I slipped:
    [IMG][/IMG]
    That's a great view you have there.

  6. #6
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    And I thought I had all the adventures. It'seems confirmed I'mean definitely making it out your way... sans falling down the waterfall. Glad to hear you are okay though!

  7. #7
    Moderator Top User jorola's Avatar
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    Well symptoms of concussion really settled in right after i posted. Frick my head hurt. But bruised hip bone and whiplash are much better. Can only work on computer an hour or so before head hurts more and vision goes blurry...sigh. Still this is improving too.
    PO I already wanted to drive a motorcycle but honestly I am too scared so I know it is best I do not. You need to be confident to do that. Sadly I just can't see me doing it.
    However I shall continue my mountain exploring. I love my time in the mountains and we go as often as we can with the Canadian Rockies in our backyard. I have had a number of falls there. Guess that is where I will continue to get my "flavour" LOL. It did make the trip (lol see what i did there - lame i know) memorable. Still laughing about it - just not too hard otherwise my head begins to hurt more.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same

  8. #8
    Senior User
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    Lake Stevens, WA
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    Now comes the hard questions?

    What WAS in that CUP??

    Were you chewing GUM?

    'Glad you are mostly all right. If the headache persist, see the Doctor.

    I've had my falls; chemo side effects. on/off motorcycles, on boats/ships, skydiving, roller blade prat falls and just walking down the street in New Castle, AU. I can't top you girl, and if it's OK, I won't try!!

    regards,
    zim

    But

  9. #9
    Regular User
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    Egads Zim you have quite the list of exciting 'tripping' adventures yourself. Who says we don't know how to seize the day and make the most of it...even if it means a few bumps and bruises. We feel alive!

 

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