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Thread: Dad Melanoma Stage 4 - Blog

  1. #1
    Newbie New User
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    Dad Melanoma Stage 4 - Blog

    My dad was diagnosed with stage 4 metastatic Melanoma Last february. He was started on gene targeted therapy and that was making significant improvements to the size of his tumours. However we discovered 3 weeks ago that his cancer had spread to his brain for which he has just finished 2 weeks radiotherapy.

    The reason I am posting is because my dad has started to write a blog to document his thoughts and experience living with cancer. It is an entertaining and reflective diary of his musings. In his own words:
    "This is a self help blog, not a manual.
    I have terminal cancer, metastatic melanoma.
    I need to find out how best to help myself.
    So I write."

    I have read many of the stories on these forums and it might be that his blog would be of interest to you or a loved one whose life has been touched by cancer. The blog contains links to useful resources in dealing with cancer also.

    Here's the link if anyone would like to read. Dad really enjoys getting feedback so anything at all would be greatly appreciated:
    Last edited by lisa1962; 08-09-2017 at 04:03 PM. Reason: reason provided in response

  2. #2
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013
    Location
    new york
    Posts
    3,020
    Hello osinbb and welcome to the forum.

    Unfortunately, the link to your father's blog has been removed. I did however, click to view to make sure it is legitimate and falls within the parameters of acceptance with our forum policy. However, I could not go further on the blog without actually subscribing, due to the subscription issue and unable to validate the blog, the link has been removed.

    We have some very supportive members here on the forum which I am sure will offer their support to your Dad.

  3. #3
    Senior User
    Join Date
    Jan 2014
    Location
    Colorado
    Posts
    317
    Hi oisinbb,

    I just want to say I would love to read your dad's blog. Could you PM me his blog information? If I can't subscribe, just want to say there are a lot of treatments out there and the field is changing fast! I hope your dad is being seen by a melanoma specialist or at a major treatment center.

    Thank you for posting here! Best wishes to your dad!

    Cheri
    Vulvar mucosal melanoma, superficial spreading type, stage I-II, depth 1 mm with regression
    Radical right-sided hemivulvectomy, clitorectomy and bilateral sentinel lymph node biopsies, May 2013, lymph nodes clear
    PET CT, NED, July 2013
    Partial left hemivulvectomy/reconstructive surgery Oct 2013, found melanoma in situ on pathology, out to margins
    November/January - Underwent 9 vulvar biopsies to try to locate the MIS for surgical excision, unsuccessful
    May 2014 - Third vulvectomy/second left hemivulvectomy for wide local excision of MIS, MIS not identified on pathology
    PET CT, still NED, June 2015
    PET CT, NED, June 2016

 

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