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Thread: New here....

  1. #1
    Newbie New User
    Join Date
    Aug 2017

    New here....

    Hello, I'm new here. I am 49 and was diagnosed with Stage IIIC Grade 2 Adenocarcinoma Uterine Cancer on July 27th of this year, after having a full hysterectomy on July 17th. My pathology report showed that my uterus was 96% invaded, and that the cancer was also found in my remaining ovary, my lymph nodes and in the muscular tissue next to the uterine wall. I have my Cath Port placement in less than 48hours (the 15th) and my first Chemo treatment is scheduled for Tuesday, August 22nd.

    The entire diagnosis was a complete shock....I'd started feeling poorly in March, got my period in April and just bled CONSTANTLY for almost a month---painful bleeding and lots of massive clots. I honestly thought I was dying! I went and saw my regular PCP, who gave me some meds to force-stop the bleeding. She then had both a pelvic and transvaginal ultrasound done and those results didn't show any tumor, but did show an abnormal thickness of the endometrial lining of my uterus. She then referred me to a GYN specialist, who did a cervical biopsy. That test resulted in the initial cancer diagnosis. I got referred to a GYN Oncologist and they recommended a complete hysterectomy to remove everything, which would then go to Pathology to be examined. Those results were far WORSE than we expected!

    My biggest concern is that I have a 6.5yr old daughter (an ONLY child) who is about to start First Grade less than a week after my first chemo cycle. I don't know what to expect for myself, but knowing that SHE will be going through this too is just breaking my heart!! My husband lost his first wife in 1999 to a bacterial infection she contracted working at a local hospital, so he's been VERY quiet about how this is affecting him. My friends and family are mostly devastated by this diagnosis.

    I'm tired and run down ALL THE TIME. I am not on any pain meds, other than taking 800mg of Motrin every 6 hours or so. I constantly have to pee (every 2-3 hours) because of all the fluids they've told me I need to drink. I'm not eating right (I either am RAVENOUS or I can't stomach the smell of food!), I'm nervous about the Cath Port procedure, the Chemo, facing the fact that the meds will be making me SICK and will cause me to to lose my hair! I feel like my emotions are ALL OVER THE PLACE. I've second-guessed the decision to do the treatment more times than I can count. I'm just an UTTER MESS!!!!

    Please tell me it's not going to be all downhill from here??

    Thanks in advance....

  2. #2
    Experienced User
    Join Date
    Jul 2017
    Hi Donna I'm so sorry that you find yourself here. You will note that there are very informed individuals in these forums that I hope provides the support you are seeking. I have not had any therapy yet (surgeries only), however there are plenty of individuals that are able to address your inquiries and concerns. I have a surgery on Wednesday where I an hoping for the best, but rest assured I will be back to the forum for help with any questions/support if the results aren't favorable.

  3. #3
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    hello donnaNew,

    I am so sorry you are going through all of this. No one wants to join this club.

    All downhill? No but there will be hard times. It is important to rally the troops. Gather your supports - friends, family, locate local resources etc that you may need in the coming weeks. Help with meals, tidying the house, getting your daughter to and from school/activities and even getting you to and from treatments. These are all things you are going to probably need help with. Better to organize now then when you are not feeling well.

    Yes this can also be hard on kids. Mine were much older than your daughter - 16, 20 and 22. It is important to help them understand what is going on to the level they understand. Not saying you have to tell them everything but kids are smart. Even if you try to hide it they figure things out. Better to have them have the right info from you. They will also feel more secure hearing it from you. Secrets are bad right? So hiding something/keeping it a secret means it is something bad. In my opinion you will only scare her more by doing that.

    Seek counseling for you, her and hubby (if willing) if need be and not when things are at its worst. Many leave going to counseling till things are really bad then it is a real struggle to fight to get back to a good mind set. Better to seek it pro-actively.

    I am sorry recovery to this point has even been hard. It is important, hard as it is, to ensure you eat well. You need your strength for the treatments. Many do amazing and even continue to work throughout them. Some have a higher degree of side effects. It is important that you let your treatment team know what is happening, hold back nothing, so they can best help you. The meds they give now are awesome though to help with those side effects. And sorry, but with chemo you need to keep drinking. It is very important to stay hydrated. SUPER important.

    Please continue to let us know how you are doing and ask any questions, vent, cry even laugh (yes you will still be able to do that too) with us. We are here for you.

    All the best,
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  4. #4
    Senior User
    Join Date
    Aug 2015
    Just wanted to extend my support. This is the place to vent all your fears, frustrations, pain, etc. Your emotional reaction is completely normal. It will not all go downhill from here. The treatments are needed for you to get well. Someone here told me to think of chemo as a life affirming substance. I know it sounds counter intuitive but it does help. Don't worry about eating healthy foods. Antioxidants can actually counteract the effects of chemo. Just find foods you can tolerate. For me, it was soft pretzels. Eat as much as you can and keep drinking water. You can do this.

  5. #5
    Newbie New User
    Join Date
    Aug 2017
    Hi Donna, just want you to know that I just finished my 6 Chemo and 28 radiation. I had stage 3 endometrial cancer, just like you, it spread to one of my ovaries and even lymph nodes. Good news is it's all gone now. My pet scan told me so. Medical treatment these day are really great. trust the doctors and the science. please be positive, be brave, be strong, if possible, be happy. I believe that my positive attitude secrete useful hormone for my body to heal. I am also grateful that I have this disease when I was 54(June 2016) so I had the strength to fight this. you can fight this as I am. Love


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