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Thread: CA19 progression

  1. #1

    CA19 progression

    Does anyone have an idea of the increased rate in CA19-9 and its relation to longevity? How significant is a jump from 198 to 432 in 6 weeks? Chemo (Gemzar and Abraxene) started in that time as well. I need straight, realistic information as I am the primary caregiver and arrangements need to be made for future care. Doctors always aim high for the patient's benefit. I need the truth. Adenosquamous carcinoma.

  2. #2
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    I am sorry but no one can truly answer this question. There are too many factors and honestly we are only caregivers patients and survivors trying to do our best to help and support others. Caregiving is a hard job. I get that as I am one too. Statics are based on information gathered from 5 to 10 even 15 years ago so how relevant that is questionable. Your best source is, and I get how frustration it is, is the doctor. If you haven't yet, I suggest getting hospice involved. They can do an initial assessment. This does not mean they have to start then and there either. They can be a support to you until the time comes though. Sorry I wish I did have an exact answer for you but i just don't.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto

  3. #3
    Super Moderator Top User ddessert's Avatar
    Join Date
    Oct 2013
    Blog Entries
    CA19-9 is really just a measure of how much leakage of pancreatic and/or bile duct enzymes are getting into the blood stream. Usually, all those fluids end up in the Intestinal tract and the CA19-9 level is low.

    Additionally, each person is capable of putting out a different amount of CA19-9. About 10% of the population can't put any out at all. We've had PanCan patients with readings in the millions. So I'm afraid that the absolute numbers by themselves don't mean a lot.

    The rising numbers do indicate that more of these enzymes are leaking into the bloodstream, for whatever reason.

    You'll probably need to look to some other metric for longevity.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - Radiation+Xeloda, 25 days in 5 weeks
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-May 2018 - NED
    Mar 2013-present - NCT01088789


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