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Thread: Mother and father with history of pancreatic cancer

  1. #1
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    Mother and father with history of pancreatic cancer

    I found this forum today and I'm so happy to be part of it.

    My mother was diagnosed with stage IV pancreatic cancer with mets to the liver on 05/17. She has received 4 cycles of Gemcitabine/Abraxane and as I type this in her room, is currently receiving her 4th cycle of 5FU/Irinotecan/Leucovorin. CA-19-9 levels have decreased from 20,000 to 4500, now back up to 8000. She seems to tolerate Gemcitabine/Abraxane a lot better; less fatigue, diarrhea, etc.

    Enrolled her with Perthera and her tumor shows possible increased sensitivity to platinum products, possible decrease sensitivity to 5FU, pAKT positive, HER2 negative. Tumor also shows common mutations in KRAS, p53, and DNMT3A.

    Interesting side note, my father passed away from pancreatic cancer at 53 years old (1999). Because of a strong family history, I saw a genetic counselor and I was found to have BRCA2 mutation. Mother is negative. So, presumably, I inherited it from my father.

    We are receiving excellent care at Virginia Mason. However, due to family reasons, we are going to move to Davis, California. Anyone here know of/familiar with the pancreatic cancer treatment programs at UC Davis, UCSF or any other treatment centers in the area?

    Thank you and again glad to be part of the forum.

  2. #2
    Hi! I just replied to your PM. But I want to mention that there are some really good PC doctors in San Francisco, from what I have heard. I'm sure others will post about it.
    February 2016- diagnosed with PC
    March 2016- inoperable due to arteries, also liver mets suspected
    March 2016-January 2017 -Gemzar/Abraxane
    February 2017 surgery-PC tumour and liver mets removed at same time

  3. #3
    Moderator Top User ddessert's Avatar
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    I can strongly recommend Dr Andrew Handifar. He is a PanCan oncologist and has personal experience with BRCA1/2.

  4. #4
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    Do you folks know anyone of anyone in the Northern California area?

    Thanks!

  5. #5
    Moderator Top User ddessert's Avatar
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    UC Davis in Sacramento and UCSF are both NCI-designated major cancer centers and should have all the expertise you’ll need.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - Radiation+Xeloda, 25 days in 5 weeks
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-Dec 2016 - NED
    Mar 2013-present - NCT01088789
    @pancanology

 

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