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Thread: Husband Just diagnosed

  1. #1
    Newbie New User
    Join Date
    Oct 2017

    Husband Just diagnosed

    After many tests, scans and 2 biopsies we have received confirmation that my Husband has primary liver and primary lung cancer. What a shock! He also has cardiomyopothy (Heart) and his ejection fraction is down to 18% which is a poor prognosis to begin with.
    I am having a hard time with this although I try not to let my Husband see this.
    Just diagnosed so waiting on appts with Oncologists, he needs one for lung and one for liver.
    He had prostate cancer 5 yrs, 8 weeks radiation 5 days a week.
    He is not a candidate for chemo or surgery because of his heart condition.
    Does anybody have any ideas on what to expect ?
    The liver tumor has taken up the entire left lobe.
    The lung tumor is smaller.
    I would appreciate any information at all right now. Trying to stay strong!

  2. #2
    Dear Ladybug: I am sorry to hear of your husband's condition, and unfortunately I have no background in this area, but a 5 year run with PC is nothing to sneeze at, so the glass may be a bit over half full to begin with. In the meantime, click the link below and go to a different world for 5 minutes.


    Best regards, DMW
    05/6/16 pre-op physical for surgery show low WBC & RBC
    5/22/16 [Birthday] Results of BM biopsy: AML 25% blasts with inv t(3:3) mutation, HIGH risk
    5/30/16 Undergo 3+7 chemo, but it doesn't touch AML, infections nearly kill me. Blasts 65%
    7/04/16 Diagnosis now Refractory AML. [:tombstone:]Six cycles of azacitidine, 21 shots over 7 days w/ 1.5" needle into gut + below navel.
    11/05/16 Move to NOLA - Infusion center 4 minutes away. 15 shots for 5 days with 5/8" 25 ga. needle Huge increase in quality of life.
    12/28/16 BMB shows blasts 12%
    4/16/17 BMB shows CD34 16%, cycles dropped to 4 weeks
    7/20/17 Diagnosis changed to "indolent leukemia", aka MDS
    7/27/17 BMB shows CD34 17%
    8/15/17 Venclexta chemo in PILL form added Onc estimates survival time now 2 - 4 YEARS.
    10/26/17 BMB results show 17/20 metaphases with inv(3:3) mutation-low blood cell counts - transfusions ineffective
    12/4/17 Diagnosis: Uncontrolled refractory AML


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