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Thread: My Father Just Diagnosed With Stage 4

  1. #101
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    These bumps in the road are hard. Take care of one another and remember we are here for you. Thinking of all of you.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

  2. #102
    Experienced User
    Join Date
    Oct 2017
    So I'm pretty upset. Ive been outvoted again by my siblings. The hospital wants to insert a port into my dads chest to administer the chemo due to the fact that his veins are basically shot. He has small veins that are hard to find and they roll. Im upset because I had a friend who had to get this same port when we were teens and she ended up getting a heart infection. I believe it affected one of the valves of her heart in which she eventually passed from that infection.

    Im just so pissed over this decision. Im hoping it does not become infected and I will have to pray on this. I can't even sleep thinking about it.
    Daughter to a rockstar dad with stage 4 lung cancer

  3. #103
    Yes, there is a risk with the port but your father might be a lot more comfortable having it.

    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

  4. #104
    I have to say the Port was the best thing ever for me..as my veins have been really bad to after a year. And now there is no pain , no searching for a vein , and it's all much faster.
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    January 2019 < CT said NED!!!!
    Fingers crossed

  5. #105
    Experienced User
    Join Date
    Oct 2017
    Thank you Mike & Pet, now I feel a bit better about this.
    He just had his chemo done a few days ago and now has a really bad rash all over his body so Im gonna take him to urgent care to have them look at it.
    I do know that chemo rashes happen but just to be on the safe side
    Daughter to a rockstar dad with stage 4 lung cancer

  6. #106
    Experienced User
    Join Date
    Oct 2017
    so this round of vigorous chemo is affecting my dad really bad. I even caught him crying. He says all thats wrong is the strong metallic taste but I think he's only telling the half truth. He has this way of not wanting to tell me everything of how he's feeling because I'm the sensitive one out of all of his kids and super attached to him.

    Its kind of frustrating not knowing how he's feeling exactly but I don't want to keep pushing him
    Daughter to a rockstar dad with stage 4 lung cancer

  7. #107
    Experienced User
    Join Date
    Oct 2017
    update: they're keeping him overnight due to low white blood cell count and fevers over 100
    Daughter to a rockstar dad with stage 4 lung cancer

  8. #108
    Senior User
    Join Date
    Dec 2012
    Hi Sasha,
    First let me say that I have had a ‘Power Port” since 2009 & lots of different chemos plus flushes every 6 weeks. I won’t live due to the chemos , but daily LIFE was so much better with the port! Here’s a plug for your DAD on getting the port. I know that didn’t go as you wished, but, please roll with the flow.

    Now I must tell you, of MAJOR importance to a patient is taking care of his/her CAREGIVER! WE don’t hurt as much for ourselves as we do for those that love us and care for us. Your Dad is just being…..”A DAD”. It is the nature of the beast (Daddies are like that). Believe me when I say that the tears were not for HIM.

    I know that this process is really hard on you. Just let his love show through and don’t hold back on your own.

    Warmest regards to you and Your Dad,


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