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Thread: My Father Just Diagnosed With Stage 4

  1. #91
    Experienced User
    Join Date
    Oct 2017
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    56
    So we found out that he liver issue was caused by the steroids...

    Now he was admitted to the hospital again 2 nights ago because we noticed he started acting strangely. He was zoned out. It was scary. Turns out that one of the legions in his brain has started growing again with tremendous swelling of the brain. They are saying he has to do more radiation on the head. They are upping his steroids dosage and he's taking it every 6 hours now.

    Id be lying if I said I wasn't stressed about this because I know the steroids was the culprit for the liver growths. Im trying so hard to be super strong right now.
    My dad said to me "So I guess its either the cancer or my liver is whats gonna take me out."

    I refuse to let him feed into that so radiation round 2 here we come!

  2. #92
    Senior User
    Join Date
    Dec 2012
    Posts
    258
    Hi Sasha,
    I'm one anti-steroid type of guy. I get to be a real crank and wacko; then I get thrush; not to mention the water weight.
    SO, I really feel your father's frustration. See if his Doctor can slowly reduce the dose.

    Keeping on doing, Sasha, you are holding up quite well.

    Regarsds, zim

  3. #93
    Experienced User
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    Oct 2017
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    They said they have to give him a high dosage because the swelling in his brain is a lot. I believe he's on 4mg of steroids every 6 hours.
    Daughter to a rockstar dad with stage 4 lung cancer

  4. #94
    Hi Sasha!
    Yes steroids have bad side effects, but for the swelling they are great. I was on 16 mg after my Brain surgery, nearly did get divorced because i was so angry all the time and couldn't sleep. But it worked. Hopefully he respond good and don't need them for long.
    Best wishes Petra
    Oct 15 diagnosed NSCLC stage IV , Mets in lymph nodes,
    Chemo 6 months, Tumour didn't grow but lymph nodes
    New Chemo 4 months, not working, new spot 4mm in Liver
    Aug 16, start Opdivo ,immune therapy
    CT Nov 16 , Tumor shrank, Lymph nodes shrank
    CT Jan 17, Tumor all the same, Lymph nodes on Neck and under arm back to normal, in Lung and Chest a bit smaller
    July 17, 2x3 cm Brain Tumor found, removed in Surgery, now radiation on spot,still on Nivu
    August 18, all still same, living life every day
    Fingers crossed

  5. #95
    Experienced User
    Join Date
    Oct 2017
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    Oh so this is why he's been so mean and angry at me. I thought it was something I was doing wrong. My defense mechanism when someone gets mad at me is to shut down and give the silence treatment. I been doing that alot and I feel bad.
    Daughter to a rockstar dad with stage 4 lung cancer

  6. #96
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,658
    Yes steroids, although necessary at times, can be very tough on the patient and especially on the caregivers. Behaviors such as psychosis, aggression, going long periods without sleeping, hyperactivity, excessive eating...excessive anything are very common. I had to take away my husband's debit and credit cards as he racked up a debit of $5000.00 in a matter of 2 weeks spending money on things we might need...in the next 10 years. OI!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

  7. #97
    Experienced User
    Join Date
    Oct 2017
    Posts
    56
    Update: My dad finished his 2nd found of radiation. It was awesome to see him ring that bell again! He will also be finished with his steroids in a few more days as its been reduced. Happy New Year everyone!
    Last edited by JustGottaMakeIt; 01-07-2019 at 06:55 PM.
    Daughter to a rockstar dad with stage 4 lung cancer

  8. #98
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,658
    Your dad is amazing - good for him! Happy new year to you both as well and your families!
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    June 24 - tumor 1/3 the original size
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED

 

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